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This paper is in the following e-collection/theme issue:

Non-Randomized Studies (funded, non-eHealth) (263) Neurology and Neurosciences (382) User-Centered Design Case Studies (842) Teamwork (91) Health Services Research (665) Participatory Design and Participatory Research (515) Qualitative Methods (242) Patient and Public Involvement in Research (69) Co-Design & Participatory Design (305)

Published on in Vol 15 (2026)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/96327, first published .
Caregiver in blue gloves holding an elderly patient's hand in a wheelchair.

Co-Designing a Care Coordination Intervention for People With Motor Neuron Disease: Protocol for a Mixed Methods Study

Co-Designing a Care Coordination Intervention for People With Motor Neuron Disease: Protocol for a Mixed Methods Study

Authors of this article:

Bryony Waters-Harvey1 Author Orcid Image ;   Kathleen Kane1 Author Orcid Image ;   Alys Wyn Griffiths1 Author Orcid Image ;   Grahame Smith2 Author Orcid Image ;   Clare M Bartlett3, 4, 5 Author Orcid Image ;   Lise Sproson5 Author Orcid Image ;   Sandra Smith1 Author Orcid Image ;   Jennie Starkey1 Author Orcid Image ;   Amy Clift1 Author Orcid Image ;   Theocharis Stavroulakis1 Author Orcid Image ;   Esther Hobson1, 6 Author Orcid Image ;   Emily Mayberry1, 6 Author Orcid Image ;   Alicia O'Cathain7 Author Orcid Image ;   Caroline Bidder8 Author Orcid Image ;   Katherine Kennedy9 Author Orcid Image ;   Jane Gibson10 Author Orcid Image ;   Christopher McDermott1, 6 Author Orcid Image ;   Liam Knox1 Author Orcid Image
Article Authors Cited by Tweetations Metrics

Bryony Waters-Harvey   1 , BSc, MSc, PhD ;   Kathleen Kane   1 , MBChB, MPH, PhD ;   Alys Wyn Griffiths   1 , BSc, PhD ;   Grahame Smith   2 , PhD ;   Clare M Bartlett   3, 4, 5 , MSc, PhD ;   Lise Sproson   5 , MSc, PGCert, BMedSc ;   Sandra Smith   1 ;   Jennie Starkey   1 ;   Amy Clift   1 , BSc, MSc ;   Theocharis Stavroulakis   1 , BSc, MSc, PhD ;   Esther Hobson   1, 6 , BMBCh, PhD ;   Emily Mayberry   1, 6 , BSc, DClinPsy, PhD ;   Alicia O'Cathain   7 , BSc, MSc, MA, PhD ;   Caroline Bidder   8 , BA, BSc ;   Katherine Kennedy   9 , BSc ;   Jane Gibson   10 , BSc, MSc ;   Christopher McDermott   1, 6 , MBChB, MRCP, PhD ;   Liam Knox   1 , Bsc, PhD

1 Division of Neuroscience, School of Medicine and Population Health, Sheffield Institute for Translational Neuroscience (SITraN), University of Sheffield, Sheffield, England, United Kingdom

2 School of Nursing and Advance Practice, Liverpool John Moores University, Liverpool, England, United Kingdom

3 School of Clinical Dentistry, University of Sheffield, Sheffield, England, United Kingdom

4 NIHR HealthTech Research Centre Long Term Conditions, Sheffield, England, United Kingdom

5 Device for Dignity, NIHR HealthTech Research Centre in Long-Term Conditions, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, United Kingdom

6 Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, England, United Kingdom

7 Sheffield Centre for Health and Related Research (SCHARR), University of Sheffield, Sheffield, England, United Kingdom

8 Morriston Hospital, South Wales MND care and Research Network, Swansea Bay University Health Board, Swansea, Wales, United Kingdom

9 Cornwall Partnership NHS Foundation Trust, Cornwall, England, United Kingdom

10 Northern Lincolnshire and Goole Hospitals NHS Foundation Trust, Lincolnshire, England, United Kingdom

Corresponding Author:

  • Liam Knox, Bsc, PhD
  • Division of Neuroscience, School of Medicine and Population Health
  • Sheffield Institute for Translational Neuroscience (SITraN), University of Sheffield
  • 385a Glossop Road
  • Sheffield, England S10 2HQ
  • United Kingdom
  • Phone: +44 1142222295
  • Email: L.Knox@sheffield.ac.uk