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This paper is in the following e-collection/theme issue:

Non-Randomized Studies (funded, non-eHealth) (264) Methods and Feasibility Studies (759) Methods and New Tools in Mental Health Research (916) Participatory Research Protocols and Proposals (300) Interventions and Support for Informal Caregivers of People with Mental Illness (153)

Published on in Vol 15 (2026)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/91726, first published .
Smartphone displaying a TAND Toolkit app with a timeline of a child's journey

Closing the Gap to Interventions for Tuberous Sclerosis Complex–Associated Neuropsychiatric Disorders (TAND): Protocol for a Longitudinal Study of TAND Severity, Predictors, and Caregiver Well-Being (TANDem-2)

Closing the Gap to Interventions for Tuberous Sclerosis Complex–Associated Neuropsychiatric Disorders (TAND): Protocol for a Longitudinal Study of TAND Severity, Predictors, and Caregiver Well-Being (TANDem-2)

Authors of this article:

Petrus J de Vries1 Author Orcid Image ;   Nola Chambers1 Author Orcid Image ;   Erin Campbell1 Author Orcid Image ;   Lucas Gutierrez-Lafrentz2, 3 Author Orcid Image ;   Tosca-Marie Heunis3 Author Orcid Image ;   Liezl Schlebusch1 Author Orcid Image ;   Guillaume Beaure d'Augères4 Author Orcid Image ;   Stacey Bissell5 Author Orcid Image ;   Anna Byars6, 7 Author Orcid Image ;   Jamie Capal6, 8 Author Orcid Image ;   Laís Cardozo9 Author Orcid Image ;   Sebastian Cukier10 Author Orcid Image ;   Peter Davis11 Author Orcid Image ;   Naomi Beth Epstein12 Author Orcid Image ;   Carla Fladrowski13, 14 Author Orcid Image ;   Jennifer Flinn15 Author Orcid Image ;   Tanjala Gipson16, 17 Author Orcid Image ;   Sarah Louise Goy18, 19 Author Orcid Image ;   John Christopher Kingswood20 Author Orcid Image ;   Darcy Krueger8, 21 Author Orcid Image ;   Francesca Little22, 23 Author Orcid Image ;   Sugnet Lubbe24 Author Orcid Image ;   Rebecca Mitchell25 Author Orcid Image ;   Micaela Rozenberg14, 26 Author Orcid Image ;   Mustafa Sahin11, 27 Author Orcid Image ;   Mitchell Silva28 Author Orcid Image ;   Catherine Smith29 Author Orcid Image ;   Shoba Srivastava1, 30 Author Orcid Image ;   Megumi Takei12 Author Orcid Image ;   Agnies van Eeghen31, 32 Author Orcid Image ;   Mary Vasseghi33, 34 Author Orcid Image ;   Jan-Paul Wagenaar35 Author Orcid Image ;   Robert Waltereit36, 37, 38 Author Orcid Image ;   Liesbeth De Waele39, 40 Author Orcid Image ;   Anna C Jansen3, 41, 42 Author Orcid Image
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Journals

  1. Vasseghi M, Behan C, Darker C, Burke E, Galvin M, Doherty C. “We’d have been so happy just to get a diagnosis of epilepsy”: A reflexive thematic analysis of lived experiences of Tuberous Sclerosis Complex in Ireland. Epilepsy & Behavior 2026;185:111263 View