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Non-randomized Protocols and Methods (ehealth) (1071) Infectious Diseases (non-STD/STI) (1906)

Published on in Vol 11, No 8 (2022): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/36798, first published .
Laptop displaying a website for ME/CFS and Long Covid communities, featuring a woman's photo and registry information.

The Facilitation of Clinical and Therapeutic Discoveries in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Related Diseases: Protocol for the You + ME Registry Research Platform

The Facilitation of Clinical and Therapeutic Discoveries in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Related Diseases: Protocol for the You + ME Registry Research Platform

Authors of this article:

Allison Ramiller1 Author Orcid Image ;   Kathleen Mudie1 Author Orcid Image ;   Elle Seibert1 Author Orcid Image ;   Sadie Whittaker1 Author Orcid Image
Article Authors Cited by (3) Tweetations (19) Metrics

Journals

  1. Mudie K, Ramiller A, Whittaker S, Phillips L. Do people with ME/CFS and joint hypermobility represent a disease subgroup? An analysis using registry data. Frontiers in Neurology 2024;15 View
  2. Zilber S, Burnworth M, Afolabi T, Brestoff J, Minczuk M, Luis A, Ling Q, Prigione A, Tolle I, Elsharkawi I, Perlstein E, Boyce D, Johnson S, Woleben K. Expanding research and care for Leigh syndrome: efforts of a patient-led advocacy organization. Research Involvement and Engagement 2025;11(1) View
  3. Esteban D, Conrad B, Cullinan A, Luong S, Albaum J, Wilk V. Tryptophan Metabolism and Aryl‐Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. MicrobiologyOpen 2026;15(3) View