Published on in Vol 11, No 8 (2022): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/36798, first published .
The Facilitation of Clinical and Therapeutic Discoveries in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Related Diseases: Protocol for the You + ME Registry Research Platform

The Facilitation of Clinical and Therapeutic Discoveries in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Related Diseases: Protocol for the You + ME Registry Research Platform

The Facilitation of Clinical and Therapeutic Discoveries in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Related Diseases: Protocol for the You + ME Registry Research Platform

Journals

  1. Mudie K, Ramiller A, Whittaker S, Phillips L. Do people with ME/CFS and joint hypermobility represent a disease subgroup? An analysis using registry data. Frontiers in Neurology 2024;15 View
  2. Zilber S, Burnworth M, Afolabi T, Brestoff J, Minczuk M, Luis A, Ling Q, Prigione A, Tolle I, Elsharkawi I, Perlstein E, Boyce D, Johnson S, Woleben K. Expanding research and care for Leigh syndrome: efforts of a patient-led advocacy organization. Research Involvement and Engagement 2025;11(1) View