This paper is in the following e-collection/theme issue:

Non-Randomized Study Protocols and Methods (Non-eHealth) (683) Dementia and Cognitive Decline (696) Design and Evaluation of Patient Education Materials (117) Participatory Design and Participatory Research (418) User-Centered Design Case Studies (713) Peer-to-Peer Support and Online Communities (797)

Published on in Vol 11, No 7 (2022): July

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/35376, first published .
The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation

The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation

The Development of Videoconference-Based Support for People Living With Rare Dementias and Their Carers: Protocol for a 3-Phase Support Group Evaluation

Authors of this article:

Claire Waddington1 Author Orcid Image ;   Emma Harding1 Author Orcid Image ;   Emilie V Brotherhood1 Author Orcid Image ;   Ian Davies Abbott2 Author Orcid Image ;   Suzanne Barker1 Author Orcid Image ;   Paul M Camic1 Author Orcid Image ;   Victory Ezeofor3 Author Orcid Image ;   Hannah Gardner1 Author Orcid Image ;   Adetola Grillo4 Author Orcid Image ;   Chris Hardy1 Author Orcid Image ;   Zoe Hoare5 Author Orcid Image ;   Roberta McKee-Jackson1 Author Orcid Image ;   Kirsten Moore6 Author Orcid Image ;   Trish O’Hara1 Author Orcid Image ;   Jennifer Roberts2 Author Orcid Image ;   Samuel Rossi-Harries1 Author Orcid Image ;   Aida Suarez-Gonzalez1 Author Orcid Image ;   Mary Pat Sullivan4 Author Orcid Image ;   Rhiannon Tudor Edwards3 Author Orcid Image ;   Millie Van Der Byl Williams1 Author Orcid Image ;   Jill Walton1 Author Orcid Image ;   Alicia Willoughby1 Author Orcid Image ;   Gill Windle2 Author Orcid Image ;   Eira Winrow3 Author Orcid Image ;   Olivia Wood1 Author Orcid Image ;   Nikki Zimmermann1 Author Orcid Image ;   Sebastian J Crutch1 Author Orcid Image ;   Joshua Stott7 Author Orcid Image
Article Authors Cited by (5) Tweetations (18) Metrics

Journals

  1. Loi S, Pijnenburg Y, Velakoulis D. Recent research advances in young-onset dementia. Current Opinion in Psychiatry 2023;36(2):126 View
  2. Stevens-Neck R, Walton J, Alterkawi S, Brotherhood E, Camic P, Crutch S, Gerritzen E, Harding E, McKee-Jackson R, Rossi-Harries S, Street R, van der Byl Williams M, Waddington C, Wood O, Moore K. A mixed methods evaluation of a program exploring predeath grief and loss for carers of people with rarer dementias. International Psychogeriatrics 2024;36(6):502 View
  3. Hayes O, El Baou C, Hardy C, Camic P, Brotherhood E, Harding E, Crutch S. How Do Care Partners of People with Rare Dementia Use Language in Online Peer Support Groups? A Quantitative Text Analysis Study. Healthcare 2024;12(3):313 View
  4. Naunton Morgan B, Windle G, Lamers C. iSupport for rare dementias: a mixed-methods non-randomised feasibility study of an online self-help programme for carers. Pilot and Feasibility Studies 2025;11(1) View
  5. Sullivan M, Camic P, Harding E, Stott J, Windle G, Davies-Abbott I, Crutch S. Designing an overview Theory of Change for a multi-component support community for people affected by rare dementia. Frontiers in Dementia 2025;4 View