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Development of Instruments and Surveys (170) Research Instruments, Questionnaires, and Tools (1191) Immunology, Allergy, Rheumatology (190) Patient-Reported Outcome Measures (PROMs) (473) Co-Design & Participatory Design (309) Patient-Centred Outcomes Research (50)

Published on in Vol 15 (2026)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/96022, first published .
Doctor using a tablet computer in a modern clinic

Development and Validation of the Idiopathic Multicentric Castleman Disease Symptom Burden Scale (ISBUS): Protocol for an International Multistage Mixed Methods Study

Development and Validation of the Idiopathic Multicentric Castleman Disease Symptom Burden Scale (ISBUS): Protocol for an International Multistage Mixed Methods Study

Authors of this article:

Philip A Powell1 Author Orcid Image ;   Anju Keetharuth1 Author Orcid Image ;   Sé Maria Frances1 Author Orcid Image ;   Jill Carlton1 Author Orcid Image ;   Kelly Makarounas-Kirchmann2 Author Orcid Image ;   Antonio Adolfo Guerra Soares Brandão3 Author Orcid Image ;   Karthik Ramasamy4, 5 Author Orcid Image ;   Francis Shupo6 Author Orcid Image ;   Kelley C Dacus7 Author Orcid Image ;   Corey Casper8, 9 Author Orcid Image ;   David C Fajgenbaum10 Author Orcid Image ;   Yeow Goh11 Author Orcid Image ;   Frits van Rhee12 Author Orcid Image ;   Pier Luigi Zinzani13, 14 Author Orcid Image ;   Éric Oksenhendler15, 16 Author Orcid Image ;   Lu Zhang17 Author Orcid Image ;   Sudipto Mukherjee18 Author Orcid Image
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