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Published on in Vol 15 (2026)

This is a member publication of Bodleian Libraries (Jisc)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/86458, first published .
Doctor reviews brain scans on large monitor in advanced medical lab

The Motor Neuron Disease Register for England, Wales, and Northern Ireland: Protocol for a Population Register

The Motor Neuron Disease Register for England, Wales, and Northern Ireland: Protocol for a Population Register

Andrea Biondi   1 * , MS, PhD ;   Elizabeth Gray   2 , BSc, PhD ;   Modupe Aggreh   1 , MSc ;   Edward Jones   1 , MSc ;   Amber Collingwood   1 , MA ;   Liam Knox   3 , BSc, PhD ;   Andrea Bredin   1 , BSc ;   David Setters   1 , BA ;   Kevin Talbot   4, 5 * , BS, DPhil, FRCP ;   Ammar Al-Chalabi   1 * , PhD, FRCP

1 Department of Basic and Clinical Neuroscience, Maurice Wohl Clinical Neuroscience Institute, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, England, United Kingdom

2 Kavli Institute for Nanoscience Discovery, University of Oxford, Oxford, England, United Kingdom

3 Sheffield Institute for Translational Neuroscience (SITraN), University of Sheffield, Sheffield, England, United Kingdom

4 Dorothy Crowfoot Hodgkin Building, Kavli Institute for Nanoscience Discovery, University of Oxford, Oxford, England, United Kingdom

5 John Radcliffe Hospital, Oxford Motor Neuron Disease Centre, Nuffield Department of Clinical Neurosciences, University of Oxford, Oxford, England, United Kingdom

*these authors contributed equally

Corresponding Author:

  • Andrea Biondi, MS, PhD
  • Department of Basic and Clinical Neuroscience, Maurice Wohl Clinical Neuroscience Institute
  • Institute of Psychiatry, Psychology and Neuroscience, King's College London
  • London, England SE5 9RT
  • United Kingdom
  • Phone: 44 20 7848 0259
  • Email: andrea.2.biondi@kcl.ac.uk