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Grant Proposals (eHealth, funded) (149) E-Health Policy and Health Systems Innovation (528) Organizational Issues (268) Knowledge Translation and Implementation Science (781) Design of Processes and Workflows (289) Protocols for Public Health Research and Surveillance (251) Health Care Quality and Health Services Research (534) Health Services in Resource-Poor Settings and LMICs (685) E-Health / Health Services Research and New Models of Care (1181) Data Science (703)

Published on in Vol 14 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/68949, first published .
Two female nurses in blue scrubs with stethoscopes, smiling

Promoting Comprehensive Care for People With Rare Diseases in a Tertiary Care Setting in Brazil: Protocol for a Mixed Methods Implementation Study

Promoting Comprehensive Care for People With Rare Diseases in a Tertiary Care Setting in Brazil: Protocol for a Mixed Methods Implementation Study

Authors of this article:

Domingos Alves1 Author Orcid Image ;   Filipe Andrade Bernardi2, 3, 4 Author Orcid Image ;   Vinicius Costa Lima2 Author Orcid Image ;   Diego Bettiol Yamada2 Author Orcid Image ;   Tatiana Takahasi Komoto2 Author Orcid Image ;   Michele de Souza Seixas2 Author Orcid Image ;   Victor Cassão2 Author Orcid Image ;   Leticia Fontanelli Straube de Souza2 Author Orcid Image ;   Amaury Lelis Dal Fabbro2 Author Orcid Image ;   Têmis Maria Félix5 Author Orcid Image ;   Ricardo Cavalli6 Author Orcid Image ;   Victor Evangelista de Faria Ferraz2 Author Orcid Image
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Journals

  1. Bernardi F, Lima V, Souza J, Rodrigues A, Sanjuluca T, Zavale O, Madeira L, Cassam Y, Schwartz I, Monsores N, Félix T, Freitas A, Rijo R, Alves D. Strengthening rare disease response in the community of Portuguese-speaking countries: a position paper on digital health innovation and international cooperation. Journal of Rare Diseases 2026;5(1) View