Promoting Comprehensive Care for People With Rare Diseases in a Tertiary Care Setting in Brazil: Protocol for a Mixed Methods Implementation Study

Domingos Alves   ^{1 *} , PhD ;   Filipe Andrade Bernardi   ^{2, 3, 4} , PhD ;   Vinicius Costa Lima   ² , PhD ;   Diego Bettiol Yamada   ² , PhD ;   Tatiana Takahasi Komoto   ² , PhD ;   Michele de Souza Seixas   ² , BSc ;   Victor Cassão   ² , MSc ;   Leticia Fontanelli Straube de Souza   ² , BSc ;   Amaury Lelis Dal Fabbro   ² , PhD ;   Têmis Maria Félix   ⁵ , PhD ;   Ricardo Cavalli   ⁶ , PhD ;   Victor Evangelista de Faria Ferraz   ^{2 *} , PhD

¹ Department of Social Medicine, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil

² Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, Brazil, Ribeirão Preto, Brazil

³ RISE – Health Research Network (Rede de Investigação em Saúde), Department of Community Medicine, Information and Health Decision-Making, Faculty of Medicine, Universidade do Porto, Porto, Portugal

⁴ Institute for Systems and Computers Engineering at Coimbra, Institute for Systems Engineering and Computers, Coimbra, Portugal

⁵ Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil

⁶ Clinical Hospital of the Faculty of Medicine of Ribeirão Preto University of São Paulo-USP, Ribeirão Preto, Brazil

*these authors contributed equally