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This paper is in the following e-collection/theme issue:

Non-randomized Protocols and Methods (ehealth) (741) Web-based and Mobile Health Interventions (4289) Research Instruments, Questionnaires, and Tools (800) Health Services in Resource-Poor Settings and LMICs (585) Patient-Reported Outcome Measures (PROMs) (396) Disabilities (169) Intellectual Disabilities (43) Developmental Problems (84)

Published on in Vol 10, No 6 (2021): June

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/24901, first published .
Assessing Health-Related Quality of Life, Morbidity, and Survival Status for Individuals With Down Syndrome in Pakistan (DS-Pak): Protocol for a Web-Based Collaborative Registry

Assessing Health-Related Quality of Life, Morbidity, and Survival Status for Individuals With Down Syndrome in Pakistan (DS-Pak): Protocol for a Web-Based Collaborative Registry

Assessing Health-Related Quality of Life, Morbidity, and Survival Status for Individuals With Down Syndrome in Pakistan (DS-Pak): Protocol for a Web-Based Collaborative Registry

Authors of this article:

Ayat Siddiqui1 Author Orcid Image ;   Laila Akbar Ladak1, 2 Author Orcid Image ;   Abdul Momin Kazi1 Author Orcid Image ;   Sidra Kaleem1 Author Orcid Image ;   Fizza Akbar1 Author Orcid Image ;   Salman Kirmani1 Author Orcid Image
Article Authors Cited by (2) Tweetations (7) Metrics

Journals

  1. Mahmood A, Gul A. Parental Stress, Familial Burden and Quality of Life in Parents of Children with Down Syndrome. Journal of Professional & Applied Psychology 2023;4(1):61 View
  2. Qaisar Z, Kirmani S, Naeem I, Asim M, Ladak L, Siddiq Shekhani S. Experiences of caregivers and healthcare providers regarding health services for children with Down syndrome in Karachi; Pakistan. PLOS Global Public Health 2026;6(4):e0006225 View