Published on in Vol 10, No 5 (2021): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/27650, first published .
Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial

Anna M Hood 1, BA, MA, PhD;  Heather Strong 2, PhD;  Cara Nwankwo 3, BA;  Yolanda Johnson 2, MS;  James Peugh 2, PhD;  Constance A Mara 2, PhD;  Lisa M Shook 4, 5, DHPE, MCHES;  William B Brinkman 4, 6, MD;  Francis J Real 4, 6, MD;  Melissa D Klein 4, 6, MD;  Rogelle Hackworth 7, BS;  Sherif M Badawy 8, 9, MD;  Alexis A Thompson 8, 9, MD;  Jean L Raphael 10, MD;  Amber M Yates 11, MD;  Kim Smith-Whitley 12, 13, MD;  Allison A King 14, 15, MD;  Cecelia Calhoun 15, MD;  Susan E Creary 16, MD;  Connie M Piccone 17, MD;  Aimee K Hildenbrand 18, 19, PhD;  Steven K Reader 18, 19, PhD;  Lynne Neumayr 20, 21, 22, MD;  Emily R Meier 23, MD;  Amy E Sobota 24, MD;  Sohail Rana 25, MD;  Maria Britto 4, 26, 27, MD;  Kay L Saving 28, MD;  Marsha Treadwell 29, PhD;  Charles T Quinn 4, 30, MD;  Russell E Ware 4, 5, MD;  Lori E Crosby 2, 4, 27, PsyD

1 Developmental Neurosciences, Institute of Child Health, University College London, London , GB

2 Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center , Cincinnati, OH, US

3 Department of Psychology, Oklahoma State University , Stillwater, OK, US

4 Department of Pediatrics, University of Cincinnati College of Medicine , Cincinnati, OH, US

5 Division of Hematology, Cincinnati Children's Hospital Medical Center , Cincinnati, OH, US

6 Division of General and Community Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, US

7 Cincinnati Children's Hospital Medical Center Partner , Cincinnati, OH, US

8 Department of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, IL, US

9 Division of Hematology, Oncology and Stem Cell Transplant, Ann & Robert Lurie Children's Hospital of Chicago , Chicago, IL, US

10 Center for Child Health Policy and Advocacy, Baylor College of Medicine , Houston, TX, US

11 Department of Pediatrics, Division of Hematology/Oncology, Baylor College of Medicine, Houston, TX, US

12 Children’s Hospital of Philadelphia , Philadelphia, PA, US

13 Perelman School of Medicine , Philadelphia, PA, US

14 Program in Occupational Therapy and Pediatrics, Division of Hematology and Oncology, Washington University School of Medicine and St. Louis Children’s Hospital, St. Louis, MO, US

15 Division of Pediatric Hematology/Oncology, Washington University School of Medicine , St. Louis, MO, US

16 Center for Innovation in Pediatric Practice, Division of Pediatric Hematology/Oncology/BMT, Nationwide Children's Hospital, Columbus, OH, US

17 University Hospitals Rainbow Babies and Children's Hospital , Cleveland, OH, US

18 Division of Behavioral Health, Nemours/ Alfred I. duPont Hospital for Children , Wilmington, DE, US

19 Center for Healthcare Delivery Science, Nemours Children’s Health System , Wilmington, DE, US

20 Department of Hematology/Oncology, Children's Hospital Oakland , Oakland, CA, US

21 AbbVie , North Chicago, IL, US

22 University of California San Francisco , San Francisco, CA, US

23 Pediatrics, Pediatric Hematology/Oncology, Indiana Hemophilia and Thrombosis Center , Indianapolis, IN, US

24 Pediatric Hematology and Oncology, Boston Medical Center , Boston, MA, US

25 Pediatrics and Child Health, College of Medicine, Howard University, Washington, DC, US

26 Adolescent and Transition Medicine, Cincinnati Children’s Hospital Medical Center , Cincinnati, OH, US

27 James M. Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center , Cincinnati, OH, US

28 Department of Pediatrics, University of Illinois College of Medicine , Peoria, IL, US

29 Department of Hematology/Oncology, University of California San Francisco Benioff Children’s Hospital , Oakland, CA, US

30 Cancer and Blood Diseases Institute, Division of Hematology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, US

Corresponding Author:

  • Anna M Hood, BA, MA, PhD
  • Developmental Neurosciences
  • Institute of Child Health
  • University College London
  • 30 Guilford Street
  • London
  • GB
  • Phone: 44 02079052744
  • Email: a.hood@ucl.ac.uk