Published on in Vol 10, No 1 (2021): January

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/24826, first published .
Mapping, Infrastructure, and Data Analysis for the Brazilian Network of Rare Diseases: Protocol for the RARASnet Observational Cohort Study

Mapping, Infrastructure, and Data Analysis for the Brazilian Network of Rare Diseases: Protocol for the RARASnet Observational Cohort Study

Mapping, Infrastructure, and Data Analysis for the Brazilian Network of Rare Diseases: Protocol for the RARASnet Observational Cohort Study

Domingos Alves 1*, PhD;  Diego Bettiol Yamada 2*, BSc;  Filipe Andrade Bernardi 3, 4*, MSc;  Isabelle Carvalho 5*, PhD;  Márcio Eloi Colombo Filho 3*, MSc;  Mariane Barros Neiva 5*, MSc;  Vinícius Costa Lima 3, 4*, BSc;  Têmis Maria Félix 6*, PhD

1 Department of Social Medicine, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto , BR

2 Public Health Postgraduate Program, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto , BR

3 Bioengineering Postgraduate Program, School of Engineering, University of São Paulo, São Carlos , BR

4 Ribeirão Preto Medical School, University of São Paulo , Ribeirão Preto , BR

5 Institute of Mathematics and Computer Sciences, University of São Paulo , São Carlos , BR

6 Medical Genetics Service, Porto Alegre Clinical Hospital , Porto Alegre , BR

*all authors contributed equally

Corresponding Author:

  • Domingos Alves, PhD
  • Department of Social Medicine
  • Ribeirão Preto Medical School
  • University of São Paulo
  • Av Bandeirantes, 3900
  • Ribeirão Preto
  • BR
  • Phone: 55 16996011595
  • Email: quiron@fmrp.usp.br