Health-Related Quality of Life in European Childhood Cancer Survivors: Protocol for a Study Within PanCareLIFE

Gabriele Calaminus   ^{1, 2 *} , MD ;   Katja Baust   ^{1 *} , DPsych ;   Claire Berger   ³ , MD ;   Julianne Byrne   ⁴ , PhD ;   Harald Binder   ⁵ , Prof Dr ;   Leonie Casagranda   ^{3, 6} , PhD ;   Desiree Grabow   ⁷ , PhD ;   Martha Grootenhuis   ⁸ , Prof Dr ;   Peter Kaatsch   ⁷ , PD ;   Melanie Kaiser   ⁷ ;   Tomas Kepak   ^{9, 10} , MD ;   Kateřina Kepáková   ⁹ , MSc ;   Leontien C M Kremer   ^{8, 11} , Prof Dr ;   Jarmila Kruseova   ¹² , PhD ;   Ales Luks   ¹² ;   Claudia Spix   ⁷ , PhD, PD ;   Marleen van den Berg   ¹³ , PhD ;   Marry M M van den Heuvel-Eibrink   ^{8, 11, 14} , Prof Dr ;   Eline van Dulmen-den Broeder   ¹³ , PhD ;   Rahel Kuonen   ¹⁵ , PhD ;   Grit Sommer   ^{15, 16 *} , PhD ;   Claudia Kuehni   ^{15, 17 *} , Prof Dr

¹ Department of Paediatric Haematology and Oncology, University Hospital Bonn, Bonn, Germany

² Department of Paediatric Haematology and Oncology, University Hospital Münster, Münster, Germany

³ Department of Paediatric Hematology and Oncology Unit, University Hospital of Saint-Étienne, Saint-Étienne, France

⁴ Boyne Research Institute, Drogheda, Ireland

⁵ Institute of Medical Biometry and Statistics, Faculty of Medicine and Medical Center, University of Freiburg, Freiburg, Germany

⁶ Host Research Team EA4607 SNA-EPIS (Autonomic Nervous System, Epidemiology, Physiology, Exercise, and Health), Jean Monnet University of Saint-Etienne, PRES (Education and Research Cluster) Lyon, St. Etienne, France

⁷ Division of Childhood Cancer Epidemiology, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics (IMBEI), University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany

⁸ Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands

⁹ University Hospital Brno, Masaryk University, Brno, Czech Republic

¹⁰ International Clinical Research Center (FNUSA-ICRC), Masaryk University, Brno, Czech Republic

¹¹ DCOG LATER, Utrecht, The Netherlands

¹² Department of Paediatric Haematology/Oncology, Second Faculty of Medicine, Charles University, Prague, Czech Republic

¹³ Department of Paediatric Oncology, Emma Children’s Hospital, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands

¹⁴ Sophias Childrens Hospital, Erasmus MC, Rotterdam, The Netherlands

¹⁵ Swiss Childhood Cancer Registry, Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland

¹⁶ Pediatric Endocrinology, Diabetology and Metabolism, Department of Pediatrics, Inselspital, Bern University Hospital, Bern, Switzerland

¹⁷ Pediatric Oncology, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland

*these authors contributed equally