This paper is in the following e-collection/theme issue:

RCTs - Protocols/Proposals (funded, already peer-reviewed, eHealth) (354)

Published on in Vol 9, No 1 (2020): January

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/14810, first published .
Self-Management Characterization for Families of Children With Medical Complexity and Their Social Networks: Protocol for a Qualitative Assessment

Self-Management Characterization for Families of Children With Medical Complexity and Their Social Networks: Protocol for a Qualitative Assessment

Self-Management Characterization for Families of Children With Medical Complexity and Their Social Networks: Protocol for a Qualitative Assessment

Authors of this article:

Rupa S Valdez1 Author Orcid Image ;   Christopher Lunsford2 Author Orcid Image ;   Jiwoon Bae1 Author Orcid Image ;   Lisa C Letzkus3 Author Orcid Image ;   Jessica Keim-Malpass3 Author Orcid Image
Article Authors Cited by (12) Tweetations (6) Metrics

Journals

  1. Blair L, Vergales J, Peregoy L, Seegal H, Keim‐Malpass J. Acceptability of an interstage home monitoring mobile application for caregivers of children with single ventricle physiology: Toward technology‐integrated family management. Journal for Specialists in Pediatric Nursing 2022;27(3) View
  2. Stonewall J, Roscoe R, Mont’Alvão C, Lerner Papautsky E, Sanford J, Valdez R. Human Factors Engineering: Designing for Diversity and Accessibility. Proceedings of the Human Factors and Ergonomics Society Annual Meeting 2021;65(1):1137 View
  3. Barton H, Pflaster E, Loganathar S, Werner A, Tarfa A, Wilkins D, Ehlenbach M, Katz B, Coller R, Valdez R, Werner N. What makes a home? Designing home personas to represent the homes of families caring for children with medical complexity. Applied Ergonomics 2023;106:103900 View
  4. Mercer A, Mauskar S, Baird J, Berry J, Chieco D, Copp K, Cox E, Haskell H, Hennessy K, Kelly M, Mallick N, McGeachey A, Melvin P, Ngo T, Pinkham A, Rogers J, Wickremasinghe W, Williams D, Landrigan C, Khan A. Family Safety Reporting in Hospitalized Children With Medical Complexity. Pediatrics 2022;150(2) View
  5. Werner N, Coller R, Hughes M, Lerner Papautsky E, Valdez R. Advancing approaches for patient ergonomics: understanding and leveraging the patient work network. Proceedings of the Human Factors and Ergonomics Society Annual Meeting 2022;66(1):592 View
  6. Valdez R, Lyon S, Wellbeloved-Stone C, Collins M, Rogers C, Cantin-Garside K, Gonclaves Fortes D, Kim C, Desai S, Keim-Malpass J, Kushalnagar R. Engaging the disability community in informatics research: rationales and practical steps. Journal of the American Medical Informatics Association 2022;29(11):1989 View
  7. Cui C, Li S, Chen W, Zhou H, Zheng X. Chinese families' knowledge, attitudes, and practices regarding seizure management for children with epilepsy: a mixed-methods study. Frontiers in Public Health 2023;11 View
  8. Kieren M, Kelly M, Garcia M, Chen T, Ngo T, Baird J, Haskell H, Luff D, Mercer A, Quiñones-Pérez B, Williams D, Khan A. Parent Experiences with the Process of Sharing Inpatient Safety Concerns for Children with Medical Complexity: A Qualitative Analysis. Academic Pediatrics 2023;23(8):1535 View
  9. Keim-Malpass J, Lunsford C, Letzkus L, Scheer E, Valdez R. Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study. JMIR Formative Research 2023;7:e52454 View
  10. Scheer E, Werner N, Coller R, Nacht C, Petty L, Tang M, Ehlenbach M, Kelly M, Finesilver S, Warner G, Katz B, Keim-Malpass J, Lunsford C, Letzkus L, Desai S, Valdez R. Designing for caregiving networks: a case study of primary caregivers of children with medical complexity. Journal of the American Medical Informatics Association 2024;31(5):1151 View
  11. Barton H, Coller R, Finesilver S, Lunsford C, Valdez R, Werner N. Children with Medical Complexity: Challenges and Opportunities for Human Factors/Ergonomics. Proceedings of the Human Factors and Ergonomics Society Annual Meeting 2020;64(1):697 View
  12. Valdez R, Lyon S, Corbett J, Wellbeloved-Stone C, Hasan S, Taylor L, DeBoer M, Cherñavvsky D, Patek S. Macroergonomic components of the patient work system shaping dyadic care management during adolescence: a case study of type 1 diabetes. Ergonomics 2024;67(11):1575 View