Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study
Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study
Svenja Litzkendorf
1
, MA
;
Tobias Hartz
2
, Dipl-Math
;
Jens Göbel
3
, BSc
;
Holger Storf
3
, PhD
;
Frédéric Pauer
4
, PhD
;
Ana Babac
1
, MSc
;
Verena Lührs
4
, MA
;
Leena Bruckner-Tuderman
5
, Dr med
;
Franziska Schauer
5
, Dr med
;
Jörg Schmidtke
6
, Dr med
;
Lisa Biehl
7
, Dip Psych
;
TOF Wagner
8
, Dr med
;
J-Matthias Graf von der Schulenburg
1
, PhD
;
Martin Frank
4
, PhD
1
Center for Health Economics Research Hannover
,
Department of Insurance
,
Leibniz University of Hanover
,
Hannover
,
DE
2
Clinical Cancer Registry of Lower Saxony
,
Hannover
,
DE
3
Medical Informatics Group
,
University Hospital Frankfurt
,
Frankfurt
,
DE
4
Centre for Quality and Management in Healthcare
,
Medical Association of Lower Saxony
,
Hannover
,
DE
5
Department of Dermatology
,
Medical University Center of Freiburg
,
Freiburg
,
DE
6
Institute of Human Genetics
,
Orphanet Deutschland
,
Hannover Medical School
,
Hannover
,
DE
7
German Alliance of Chronic Rare Diseases
,
Berlin
,
DE
8
Frankfurt Center for Rare Diseases
,
University Hospital Frankfurt
,
Frankfurt
,
DE
Corresponding Author:
-
Svenja Litzkendorf, MA
-
Center for Health Economics Research Hannover
-
Department of Insurance
-
Leibniz University of Hanover
-
7th Floor
-
Otto-Brenner-Straße 1
-
Hannover
-
DE
-
Phone:
49 511 762 ext 14241
-
Email: sl@cherh.de