Published on in Vol 7 , No 9 (2018) :September
Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study
Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study
1 Center for Health Economics Research Hannover , Department of Insurance , Leibniz University of Hanover , Hannover , DE
2 Clinical Cancer Registry of Lower Saxony , Hannover , DE
3 Medical Informatics Group , University Hospital Frankfurt , Frankfurt , DE
4 Centre for Quality and Management in Healthcare , Medical Association of Lower Saxony , Hannover , DE
5 Department of Dermatology , Medical University Center of Freiburg , Freiburg , DE
6 Institute of Human Genetics , Orphanet Deutschland , Hannover Medical School , Hannover , DE
7 German Alliance of Chronic Rare Diseases , Berlin , DE
8 Frankfurt Center for Rare Diseases , University Hospital Frankfurt , Frankfurt , DE