Published on in Vol 7 , No 9 (2018) :September

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/11248, first published .
Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

Svenja Litzkendorf 1 , MA ;   Tobias Hartz 2 , Dipl-Math ;   Jens Göbel 3 , BSc ;   Holger Storf 3 , PhD ;   Frédéric Pauer 4 , PhD ;   Ana Babac 1 , MSc ;   Verena Lührs 4 , MA ;   Leena Bruckner-Tuderman 5 , Dr med ;   Franziska Schauer 5 , Dr med ;   Jörg Schmidtke 6 , Dr med ;   Lisa Biehl 7 , Dip Psych ;   TOF Wagner 8 , Dr med ;   J-Matthias Graf von der Schulenburg 1 , PhD ;   Martin Frank 4 , PhD

1 Center for Health Economics Research Hannover , Department of Insurance , Leibniz University of Hanover , Hannover , DE

2 Clinical Cancer Registry of Lower Saxony , Hannover , DE

3 Medical Informatics Group , University Hospital Frankfurt , Frankfurt , DE

4 Centre for Quality and Management in Healthcare , Medical Association of Lower Saxony , Hannover , DE

5 Department of Dermatology , Medical University Center of Freiburg , Freiburg , DE

6 Institute of Human Genetics , Orphanet Deutschland , Hannover Medical School , Hannover , DE

7 German Alliance of Chronic Rare Diseases , Berlin , DE

8 Frankfurt Center for Rare Diseases , University Hospital Frankfurt , Frankfurt , DE

Corresponding Author:

  • Svenja Litzkendorf, MA
  • Center for Health Economics Research Hannover
  • Department of Insurance
  • Leibniz University of Hanover
  • 7th Floor
  • Otto-Brenner-Straße 1
  • Hannover
  • DE
  • Phone: 49 511 762 ext 14241
  • Email: sl@cherh.de