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Citing this Article

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Published on 19.09.18 in Vol 7, No 9 (2018): September

Preprints (earlier versions) of this paper are available at, first published Jun 27, 2018.

This paper is in the following e-collection/theme issue:

    Corrigenda and Addenda

    Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

    1Center for Health Economics Research Hannover, Department of Insurance, Leibniz University of Hanover, Hannover, Germany

    2Clinical Cancer Registry of Lower Saxony, Hannover, Germany

    3Medical Informatics Group, University Hospital Frankfurt, Frankfurt, Germany

    4Centre for Quality and Management in Healthcare, Medical Association of Lower Saxony, Hannover, Germany

    5Department of Dermatology, Medical University Center of Freiburg, Freiburg, Germany

    6Institute of Human Genetics, Orphanet Deutschland, Hannover Medical School, Hannover, Germany

    7German Alliance of Chronic Rare Diseases, Berlin, Germany

    8Frankfurt Center for Rare Diseases, University Hospital Frankfurt, Frankfurt, Germany

    Corresponding Author:

    Svenja Litzkendorf, MA

    Center for Health Economics Research Hannover

    Department of Insurance

    Leibniz University of Hanover

    7th Floor

    Otto-Brenner-Straße 1

    Hannover, 30159


    Phone: 49 511 762 ext 14241

    Fax:49 511 762 5081


    Related Article:

    JMIR Res Protoc 2018;7(9):e11248


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    The corresponding author of the paper “Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study” (JMIR Res Protoc 2018;7(5):e112), made a mistake in the final stage of proofreading. The academic degrees of Leena Bruckner-Tuderman, Jörg Schmidtke, TOF Wagner, and Franziska Schauer were incorrectly listed as “PhD”. Instead, the degrees for all four of these authors should be “Dr med”, which represents an academic degree according to the German academic system.

    The correction will appear in the online version of the paper on the JMIR website on September 6, 2018, together with the publication of this correction notice. Because this was made after submission to PubMed, Pubmed Central, and other full-text repositories, the corrected article also has been re-submitted to those repositories.

    Edited by N Kuter; This is a non–peer-reviewed article. submitted 27.06.18; accepted 20.08.18; published 19.09.18

    ©Svenja Litzkendorf, Tobias Hartz, Jens Göbel, Holger Storf, Frédéric Pauer, Ana Babac, Verena Lührs, Leena Bruckner-Tuderman, Franziska Schauer, Jörg Schmidtke, Lisa Biehl, TOF Wagner, J-Matthias Graf von der Schulenburg, Martin Frank. Originally published in JMIR Research Protocols (, 19.09.2018.

    This is an open-access article distributed under the terms of the Creative Commons Attribution License (, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on, as well as this copyright and license information must be included.