Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

¹ Center for Health Economics Research Hannover, Department of Insurance, Leibniz University of Hanover, Hannover , DE

² Clinical Cancer Registry of Lower Saxony , Hannover , DE

³ Medical Informatics Group , University Hospital Frankfurt, Frankfurt , DE

⁴ Centre for Quality and Management in Healthcare , Medical Association of Lower Saxony, Hannover , DE

⁵ Department of Dermatology , Medical University Center of Freiburg, Freiburg , DE

⁶ Institute of Human Genetics, Orphanet Deutschland, Hannover Medical School, Hannover , DE

⁷ German Alliance of Chronic Rare Diseases , Berlin , DE

⁸ Frankfurt Center for Rare Diseases , University Hospital Frankfurt, Frankfurt , DE