Published on in Vol 7 , No 5 (2018) :May

1 Center for Health Economics Research Hannover, Department of Insurance, Leibniz University of Hanover, Hannover, DE
2 Clinical Cancer Registry of Lower Saxony, Hannover, DE
3 Medical Informatics Group, University Hospital Frankfurt, Frankfurt, DE
4 Centre for Quality and Management in Healthcare, Medical Association of Lower Saxony, Hannover, DE
5 Department of Dermatology, Medical University Center of Freiburg, Freiburg, DE
6 Institute of Human Genetics, Orphanet Deutschland, Hannover Medical School, Hannover, DE
7 German Alliance of Chronic Rare Diseases, Berlin, DE
8 Frankfurt Center for Rare Diseases, University Hospital Frankfurt, Frankfurt, DE