Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Monday, March 11, 2019 at 4:00 PM to 4:30 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Citing this Article

Right click to copy or hit: ctrl+c (cmd+c on mac)

Published on 28.04.17 in Vol 6, No 4 (2017): April

This paper is in the following e-collection/theme issue:

Works citing "Engaging Patients and Caregivers Managing Rare Diseases to Improve the Methods of Clinical Guideline Development: A Research Protocol"

According to Crossref, the following articles are citing this article (DOI 10.2196/resprot.6902):

(note that this is only a small subset of citations)

  1. Khodyakov D, Grant S, Denger B, Kinnett K, Martin A, Peay H, Coulter I. Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development. The Patient - Patient-Centered Outcomes Research 2019;
    CrossRef
  2. Denger B, Kinnett K, Martin A, Grant S, Armstrong C, Khodyakov D. Patient and caregiver perspectives on guideline adherence: the case of endocrine and bone health recommendations for Duchenne muscular dystrophy. Orphanet Journal of Rare Diseases 2019;14(1)
    CrossRef
  3. Grant S, Hazlewood GS, Peay HL, Lucas A, Coulter I, Fink A, Khodyakov D. Practical Considerations for Using Online Methods to Engage Patients in Guideline Development. The Patient - Patient-Centered Outcomes Research 2018;11(2):155
    CrossRef
  4. Young A, Menon D, Street J, Al-Hertani W, Stafinski T. Exploring patient and family involvement in the lifecycle of an orphan drug: a scoping review. Orphanet Journal of Rare Diseases 2017;12(1)
    CrossRef