A Digital Decision Support Tool to Enhance Decisional Capacity for Clinical Trial Consent: Design and Development

Journals

1. McCormack L, Wylie A, Moultrie R, Furberg R, Wheeler A, Treiman K, Bailey D, Raspa M, Didden R. Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability. PLOS ONE 2019;14(10):e0223801 View
2. Pang P, Chang S, Verspoor K, Clavisi O. The Use of Web-Based Technologies in Health Research Participation: Qualitative Study of Consumer and Researcher Experiences. Journal of Medical Internet Research 2018;20(10):e12094 View
3. Furberg R, Raspa M, Wheeler A, McCormack L, Bailey D. A Digital Health App to Assess Decisional Capacity to Provide Informed Consent: Protocol for a Randomized Controlled Trial. JMIR Research Protocols 2018;7(11):e10360 View
4. Gibson R, Bouamrane M, Dunlop M. Design Requirements for a Digital Aid to Support Adults With Mild Learning Disabilities During Clinical Consultations: Qualitative Study With Experts. JMIR Rehabilitation and Assistive Technologies 2019;6(1):e10449 View
5. De Sutter E, Zaçe D, Boccia S, Di Pietro M, Geerts D, Borry P, Huys I. Implementation of Electronic Informed Consent in Biomedical Research and Stakeholders’ Perspectives: Systematic Review. Journal of Medical Internet Research 2020;22(10):e19129 View
6. Shepherd V, Wood F, Griffith R, Sheehan M, Hood K. Development of a decision support intervention for family members of adults who lack capacity to consent to trials. BMC Medical Informatics and Decision Making 2021;21(1) View
7. Göttgens I, Oertelt-Prigione S. The Application of Human-Centered Design Approaches in Health Research and Innovation: A Narrative Review of Current Practices. JMIR mHealth and uHealth 2021;9(12):e28102 View
8. Henni S, Maurud S, Fuglerud K, Moen A. The experiences, needs and barriers of people with impairments related to usability and accessibility of digital health solutions, levels of involvement in the design process and strategies for participatory and universal design: a scoping review. BMC Public Health 2022;22(1) View
9. Janevic M, Mathur V, Booker S, Morais C, Meints S, Yeager K, Meghani S. Making Pain Research More Inclusive: Why and How. The Journal of Pain 2022;23(5):707 View
10. van Calis J, Bevelander K, van der Cruijsen A, Leusink G, Naaldenberg J. Toward Inclusive Approaches in the Design, Development, and Implementation of eHealth in the Intellectual Disability Sector: Scoping Review. Journal of Medical Internet Research 2023;25:e45819 View
11. Serdenes R, Arana F, Karasin J, Kontos N, Musselman M. Approaching differential diagnosis and decisional capacity assessment in the context of COVID-19 conspiracy beliefs: A narrative review and clinical discussion. General Hospital Psychiatry 2023;83:75 View
12. Labkoff S, Quintana Y, Rozenblit L. Identifying the capabilities for creating next-generation registries: a guide for data leaders and a case for “registry science”. Journal of the American Medical Informatics Association 2024;31(4):1001 View
13. Pietrantonio F, Florczak M, Kuhn S, Kärberg K, Leung T, Said Criado I, Sikorski S, Ruggeri M, Signorini A, Rosiello F, Drago C, Vinci A, Barreto V, Montano N, Dicker D, Gomez Huelgas R. Applications to augment patient care for Internal Medicine specialists: a position paper from the EFIM working group on telemedicine, innovative technologies & digital health. Frontiers in Public Health 2024;12 View
14. McDonald K, Schwartz A, Dinerstein R, Olick R, Sabatello M. Responsible inclusion: A systematic review of consent to social-behavioral research with adults with intellectual disability in the US. Disability and Health Journal 2024;17(4):101669 View
15. Liu W, Zhang L, Djamasbi S, Tulu B, Muehlschlegel S. Development of web- and mobile-based shared decision-making tools in the neurological intensive care unit. Neurotherapeutics 2024:e00503 View