Published on in Vol 3, No 1 (2014): Jan-Mar

Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

Using the Internet to Seek Information About Genetic and Rare Diseases: A Case Study Comparing Data From 2006 and 2011

Tamandra Morgan 1, ScM;  Johanna Schmidt 2, MPH;  Christy Haakonsen 3, ScM;  Janine Lewis 1, MS;  Maria Della Rocca 1, MS;  Stephanie Morrison 1, MPH;  Barbara Biesecker 4, MS, PhD;  Kimberly A. Kaphingst 5, ScD

1 ICF International , Rockville, MD, US

2 Children's National Medical Center , Washington, DC, US

3 The Harvey Institute for Human Genetics , Baltimore, MD, US

4 National Human Genome Research Institute , Bethesda, MD, US

5 Washington University School of Medicine , St Louis, MO, US

Corresponding Author: