@Article{info:doi/10.2196/24689, author="Quilico, Enrico and Swaine, Bonnie and Alarie, Christophe and Colantonio, Angela", title="Community-Based Physical Activity Interventions for Individuals with Moderate to Severe Traumatic Brain Injury: Scoping Review Protocol", journal="JMIR Res Protoc", year="2021", month="Jan", day="13", volume="10", number="1", pages="e24689", keywords="traumatic brain injury", keywords="community", keywords="physical activity", keywords="exercise", keywords="sex", keywords="gender", abstract="Background: Long-term physical, cognitive, and psychosocial problems resulting from moderate to severe traumatic brain injury (TBI) can prevent individuals from returning to preinjury lifestyles because of significant challenges with employment, leisure, and relationships. While physical activity (PA) is proposed as a cost-effective method to alleviate problems after moderate to severe TBI, there is no review to date that synthesizes the evidence for PA in the community-based context. Further, although sex- and gender-based considerations in research are considered requisite to good science, there is no review on PA and TBI that has included this explicit focus. Objective: The purpose of this review is to map and synthesize the current evidence identified through a systematic search of community-based PA interventions for individuals of all ages with moderate to severe TBI and provide an overview of that evidence by asking the following research questions: (1) what are the characteristics of community-based PA programs for individuals with moderate to severe TBI, (2) what are the reported health-related outcomes and measurement tools used to evaluate them, and (3) what considerations have been given to sex and/or gender? Methods: Searches will be conducted of six academic databases for peer-reviewed articles. Two reviewers will independently screen the articles for inclusion and extract data for the analysis. The extracted data will be coded according to the Consensus on Exercise Reporting Template checklist and the Template for Intervention Description and Replication checklist to provide sufficient detail for replication. Results: The abstract screening was completed by two reviewers and the extracted data were analyzed. A qualitative synthesis and description of community-based PA interventions for individuals with moderate to severe TBI will be provided. Conclusions: This scoping review will generate new knowledge from published and publicly available literature. Dissemination of the results will include activities related to knowledge transfer for community-based PA after moderate to severe TBI for future research and practice. Evidence-based recommendations, future directions, potential limitations, use of online/digital components, and the possible need for a systematic review will be discussed as well. International Registered Report Identifier (IRRID): DERR1-10.2196/24689 ", doi="10.2196/24689", url="http://www.researchprotocols.org/2021/1/e24689/", url="http://www.ncbi.nlm.nih.gov/pubmed/33439145" } @Article{info:doi/10.2196/17765, author="Isangula, Kahabi and Edwards, Grace and Mwansisya, Tumbwene and Mbekenga, Columba and Pallangyo, Eunice and Sarki, Ahmed and Ndirangu-Mugo, Eunice", title="Open and Distance Learning Programs for Nursing and Midwifery Education in East Africa: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2021", month="Jan", day="11", volume="10", number="1", pages="e17765", keywords="open and distance", keywords="learning", keywords="health care", keywords="nurses", keywords="midwifery", keywords="health", keywords="East Africa", abstract="Background: In the face of growing modernity and the coronavirus disease 2019 (COVID-19) pandemic, open and distance learning (ODL) is considered to play an important role in increasing access to education worldwide. There is a robust evidence base demonstrating its cost effectiveness in comparison with conventional class-based teaching; however, the transition to this new paradigm of learning for nursing and midwifery courses has been difficult in low-income countries. While there are notable efforts to increase internet and education access to health care professionals, not much is known about ODL for nurses and midwives in East African countries. Objective: The objective of this scoping review is to understand whether ODL programs for nursing and midwifery education exist, the drivers of their adoption, their implementation, the topics/courses covered, their acceptability, and their impacts in East African countries. Methods: The scoping review methodology employs the framework developed by Arksey and O'Malley. Using an exploratory approach, a two-stage screening process consisting of a title and abstract scan and a full-text review will be used to determine the eligibility of articles. To be included, articles must report on an existing ODL initiative for nurses and midwives in Uganda, Tanzania, and Kenya. All articles will be independently assessed for eligibility by pairs of reviewers, and all eligible articles will be abstracted and charted in duplicate using a standardized form. Results: Details of ODL for nursing and midwifery education initiatives and study outcomes will be summarized in a table. The extracted data will undergo exploratory descriptive analysis, and the results will be classified into learner and clinical outcomes. Conclusions: Evidence on ODL for nursing and midwifery education will inform the ongoing development and restructuring of health care professional education in East Africa amidst the COVID-19 pandemic. International Registered Report Identifier (IRRID): PRR1-10.2196/17765 ", doi="10.2196/17765", url="http://www.researchprotocols.org/2021/1/e17765/", url="http://www.ncbi.nlm.nih.gov/pubmed/33427679" } @Article{info:doi/10.2196/23207, author="Lavoie, Audrey and Dub{\'e}, V{\'e}ronique", title="Web-Based Interventions to Promote Healthy Lifestyles for Older Adults: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2021", month="Jan", day="4", volume="10", number="1", pages="e23207", keywords="Aged", keywords="web-based intervention", keywords="healthy lifestyle", keywords="behavioral change", keywords="components", keywords="effects", abstract="Background: With the aging of the population and rising rates of chronic diseases, older adults need support if they are to adopt healthy lifestyles. Web-based interventions should be considered for this purpose, since they are easily accessed and can foster healthy lifestyles among older adults. However, the literature on such interventions discusses a variety of components and effects and provides only 2 syntheses of knowledge on web-based interventions with older adults. These studies focus on populations aged 50 years and older, whereas the components and effects of interventions for a population of older adults (ie, 65 years and older) may differ. In addition, these 2 syntheses examined only quantitative studies, although other types of studies (ie, qualitative) are available and could help advance knowledge in this field. A scoping review is therefore relevant in order to explore the extent of the literature on this subject. Objective: The purpose of the study described by this protocol is to explore the extent of the literature (experimental, quasi-experimental, qualitative, systematic reviews, and grey literature) on the components and effects of web-based interventions as a way to promote healthy lifestyles among older adults. Methods: The databases MEDLINE, CINAHL, PsycInfo, Web of Science, Cochrane Database of Systematic Review and Joanna Briggs Library will be searched, in addition to the grey literature using Google Scholar and OpenGrey. Studies will be selected for the review by 2 researchers, working independently. The data will be synthesized based on the conceptualization of web-based interventions (ie, behavior change techniques, dispensation modes, and theories). A thematic analysis will be performed to summarize the components of the interventions studied. Results: The database search will begin in August 2020 and be completed in October 2020. Conclusions: This scoping review should highlight web-based interventions designed to promote healthy lifestyles, as well as their components and effects, among people aged 65 years and older. These results could provide important guidance for intervention developers and designers in identifying the components of web-based interventions relevant to older adults and lead to further studies on this topic. International Registered Report Identifier (IRRID): PRR1-10.2196/23207 ", doi="10.2196/23207", url="https://www.researchprotocols.org/2021/1/e23207", url="http://www.ncbi.nlm.nih.gov/pubmed/33393929" } @Article{info:doi/10.2196/19695, author="Guinemer, Camille and Boeker, Martin and Weiss, Bjoern and Fuerstenau, Daniel and Balzer, Felix and Poncette, Akira-Sebastian", title="Telemedicine in Intensive Care Units: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2020", month="Dec", day="31", volume="9", number="12", pages="e19695", keywords="tele-ICU", keywords="intensive care unit", keywords="intensive care", keywords="telemedicine", keywords="critical care", keywords="implementation", keywords="scoping review", abstract="Background: Telemedicine has been deployed to address issues in intensive care delivery, as well as to improve outcome and quality of care. Implementation of this technology has been characterized by high variability. Tele-intensive care unit (ICU) interventions involve the combination of multiple technological and organizational components, as well as interconnections of key stakeholders inside the hospital organization. The extensive literature on the benefits of tele-ICUs has been characterized as heterogeneous. On one hand, positive clinical and economical outcomes have been shown in multiple studies. On the other hand, no tangible benefits could be detected in several cases. This could be due to the diverse forms of organizations and the fact that tele-ICU interventions are complex to evaluate. The implementation context of tele-ICUs has been shown to play an important role in the success of the technology. The benefits derived from tele-ICUs depend on the organization where it is deployed and how the telemedicine systems are applied. There is therefore value in analyzing the benefits of tele-ICUs in relation to the characteristics of the organization where it is deployed. To date, research on the topic has not provided a comprehensive overview of literature taking both the technology setup and implementation context into account. Objective: We present a protocol for a scoping review of the literature on telemedicine in the ICU and its benefits in intensive care. The purpose of this review is to map out evidence about telemedicine in critical care in light of the implementation context. This review could represent a valuable contribution to support the development of tele-ICU technologies and offer perspectives on possible configurations, based on the implementation context and use case. Methods: We have followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) checklist and the recommendations of the Joanna Briggs Institute methodology for scoping reviews. The scoping review and subsequent systematic review will be completed by spring 2021. Results: The preliminary search has been conducted. After removing all duplicates, we found 2530 results. The review can now be advanced to the next steps of the methodology, including literature database queries with appropriate keywords, retrieval of the results in a reference management tool, and screening of titles and abstracts. Conclusions: The results of the search indicate that there is sufficient literature to complete the scoping review. Upon completion, the scoping review will provide a map of existing evidence on tele-ICU systems given the implementation context. Findings of this research could be used by researchers, clinicians, and implementation teams as they determine the appropriate setup of new or existing tele-ICU systems. The need for future research contributions and systematic reviews will be identified. International Registered Report Identifier (IRRID): DERR1-10.2196/19695 ", doi="10.2196/19695", url="http://www.researchprotocols.org/2020/12/e19695/", url="http://www.ncbi.nlm.nih.gov/pubmed/33382040" } @Article{info:doi/10.2196/25501, author="Thiessen, Maclean and Soriano, Michelle Andrea and Loewen, John Hal and Decker, Margaret Kathleen", title="Impact of Telemedicine Use by Oncology Physicians on the Patient and Informal Caregiver Experience of Receiving Care: Protocol for a Scoping Review in the Context of COVID-19", journal="JMIR Res Protoc", year="2020", month="Dec", day="15", volume="9", number="12", pages="e25501", keywords="cancer", keywords="experience", keywords="information needs", keywords="telemedicine", keywords="telehealth", keywords="COVID-19", keywords="patient satisfaction", abstract="Background: During the COVID-19 pandemic, the use of telemedicine by oncology physicians in Manitoba, Canada, has increased to limit the risk of exposure to the virus for both patients and health care providers. It is not clear how telemedicine impacts the information needs of patients or the experience of receiving cancer care. Objective: The objective of this study is to describe how the use of telemedicine impacts the information needs and experience of patients with cancer and their informal caregivers (ie, family and friends) and identify directions for future research. Methods: This review will include all studies addressing telemedicine in the cancer context including those using quantitative, qualitative, and mixed methods approaches. This scoping review will be conducted using the methodology described by the Joanna Briggs Institute. In collaboration with a librarian scientist specializing in health sciences, a comprehensive search will be undertaken to identify and retrieve relevant reports published in English from 1990 to the present. Databases searched will include MEDLINE, CINAHL, EMBASE, Scopus, Cochrane Library, and PsycINFO. Data will be extracted by two independent reviewers, synthesized, and reported in a summary table and in a narrative format describing what has been reported regarding the impact of telemedicine by physicians in oncology on the experience of patients and their informal caregivers and their receipt of information. Results: The results from this scoping review are expected to be available by late spring 2021. Conclusions: The results from this scoping review will be useful for informing practice as well as directing future research, both in the context of COVID-19 and beyond. International Registered Report Identifier (IRRID): PRR1-10.2196/25501 ", doi="10.2196/25501", url="http://www.researchprotocols.org/2020/12/e25501/", url="http://www.ncbi.nlm.nih.gov/pubmed/33290243" } @Article{info:doi/10.2196/22847, author="Fujioka, Keiko Jamie and Budhwani, Suman and Thomas-Jacques, Tyla and De Vera, Kristina and Challa, Priyanka and Fuller, Kaitlin and Hogeveen, Sophie and Gordon, Dara and Shahid, Simone and Seto, Emily and Shaw, James", title="Challenges and Strategies for Promoting Health Equity in Virtual Care: Protocol for a Scoping Review of Reviews", journal="JMIR Res Protoc", year="2020", month="Dec", day="7", volume="9", number="12", pages="e22847", keywords="health equity", keywords="digital health", keywords="virtual care", keywords="telemedicine", keywords="scoping review", keywords="COVID-19", keywords="challenge", keywords="strategy", abstract="Background: The rapid virtualization of health services during the COVID-19 pandemic has drawn increasing attention to the impact of virtual care technologies on health equity. In some circumstances, virtual care initiatives have been shown to increase health disparities, as individuals from underserved communities are less likely to benefit from such initiatives. Objective: The purpose of this paper is to describe a protocol for a scoping review of reviews that aims to map review-level evidence that describes challenges and strategies for promoting effective engagement with virtual care technologies among underserved communities. Methods: Our methodology was adapted from seminal scoping review guidelines provided by Arksey and O'Malley, Levac at al, Colquhoun et al, and the Joanna Briggs Institute. Our search strategy was developed for the following databases: MEDLINE (on Ovid), EMBASE (on Ovid), CINAHL (on EBSCO), Scopus, and Epistemonikos. Supplementary searches will include the use of Google Scholar and reference tracking. Each citation will be independently screened by 2 researchers at the title and abstract level, and full-text screening will be performed in accordance with our eligibility criteria. The eligibility criteria focused on the inclusion of methods-driven reviews (ie, systematic reviews, scoping reviews, meta-analyses, realist reviews, and critical interpretative syntheses) to enhance rigor and quality. Other inclusion criteria included a focus on virtual care services that facilitate bidirectional patient-provider communication (ie, video, telephone, and asynchronous messaging visits) for underserved populations (ie, those who experience social disadvantage due to race, age, income, and other factors related to the social determinants of health). Results: This scoping review of reviews will provide a broad overview of identified challenges associated with the accessibility of virtual health care services among underserved communities. In addition, strategies for improving the access to, uptake of, and engagement with virtual care technologies among underserved communities will be identified. The knowledge synthesized from this review will aid in developing and implementing virtual services that acknowledge the unique needs of populations who experience barriers to care and disproportionately worse health outcomes. The results will also inform gaps in current research. Conclusions: The rapid shift toward virtual health services has highlighted the urgent need to critically examine the intersection of virtual care and health equity. Although technology-driven innovations in health care generally aim to improve access, quality, and health outcomes, it is also possible for these innovations to produce intervention-generated inequities. Assessing current review-level evidence on the key challenges and strategies for improving the application of virtual care in underserved communities is imperative for ensuring that virtual care benefits all populations. International Registered Report Identifier (IRRID): PRR1-10.2196/22847 ", doi="10.2196/22847", url="http://www.researchprotocols.org/2020/12/e22847/", url="http://www.ncbi.nlm.nih.gov/pubmed/33211020" } @Article{info:doi/10.2196/21860, author="Camp, Pat and Girt, Mirha and Wells, Alix and Malas, Adeeb and Peter, Maryke and Crosbie, Stephanie and Holyk, Travis", title="Virtual Care for Indigenous Populations in Canada, the United States, Australia, and New Zealand: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2020", month="Dec", day="1", volume="9", number="12", pages="e21860", keywords="virtual care", keywords="Indigenous", keywords="Indigenous health", keywords="accessibility", keywords="cultural competency", keywords="feasibility", keywords="acceptability", keywords="utility", abstract="Background: Indigenous people in Canada, the United States, Australia, and New Zealand experience an increased burden of chronic diseases compared to non-Indigenous people in these countries. Lack of necessary services and culturally relevant care for Indigenous people contributes to this burden. Many Indigenous communities have implemented systems, such as virtual care, to improve chronic disease management. Virtual care has extended beyond videoconferencing to include more advanced technologies, such as remote biometric monitoring devices. However, given the historical and ongoing Western intrusion into Indigenous day to day life, these technologies may seem more invasive and thus require additional research on their acceptability and utility within Indigenous populations. Objective: The objective of this paper is to present the protocol for a scoping review, which aims to map existing evidence. This study is based on the following guiding research question: What are the characteristics of virtual care use by Indigenous adult populations in Canada, the United States, Australia, and New Zealand? The subquestions are related to the technology used, health conditions and nature of the virtual care, cultural safety, and key concepts for effective use. Methods: This scoping review protocol is informed by the methodology described by the Joanna Briggs Institute and is supplemented by the frameworks proposed by Arksey and O'Malley and Levac et al. A search for published and gray literature, written in English, and published between 2000 and present will be completed utilizing electronic databases and search engines, including MEDLINE, CINAHL, Embase, Indigenous Peoples of North America, Australian Indigenous HealthInfoNet, Informit, and Native Health Database. Search results will be uploaded to the review software, Covidence, for title and abstract screening before full-text screening begins. This process will be repeated for gray literature. Upon completion, a data abstraction tool will organize the relevant information into categorical formations. Results: The search strategy has been confirmed, and the screening of titles and abstracts is underway. As of October 2020, we have identified over 300 articles for full-text screening. Conclusions: Previous reviews have addressed virtual care within Indigenous communities. However, new virtual care technologies have since emerged; subsequently, additional literature has been published. Mapping and synthesizing this literature will inform new directions for research and discussion. International Registered Report Identifier (IRRID): PRR1-10.2196/21860 ", doi="10.2196/21860", url="https://www.researchprotocols.org/2020/12/e21860", url="http://www.ncbi.nlm.nih.gov/pubmed/33258789" } @Article{info:doi/10.2196/24899, author="Li, Ling and Ackermann, Khalia and Baker, Jannah and Westbrook, Johanna", title="Use and Evaluation of Computerized Clinical Decision Support Systems for Early Detection of Sepsis in Hospitals: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2020", month="Nov", day="20", volume="9", number="11", pages="e24899", keywords="sepsis", keywords="early detection of disease", keywords="computerized clinical decision support systems", keywords="patient safety", keywords="electronic health records", keywords="sepsis care pathway", abstract="Background: Sepsis is a leading cause of death in hospitals, with high associated costs for both patients and health care systems worldwide. Early detection followed by timely intervention is critical for successful sepsis management and, hence, can save lives. Health care institutions are increasingly leveraging clinical data captured in electronic health records for the development of computerized clinical decision support (CCDS) systems aimed at enhancing the early detection of sepsis. However, a comprehensive evidence base regarding sepsis CCDS systems to inform clinical practice, research, and policy is currently lacking. Objective: This scoping review aims to systematically describe studies reporting on the use and evaluation of CCDS systems for early detection of sepsis in hospitals. Methods: The methodology for conducting scoping reviews presented by the Joanna Briggs Institute Reviewer's Manual and the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) will be used and adapted as guides. A comprehensive literature search of 10 electronic databases will be conducted to identify all empirical quantitative and qualitative studies that investigate the use of CCDS systems for early detection of sepsis in hospitals. Detailed inclusion and exclusion criteria have been developed. Two reviewers will independently screen all articles based on these criteria. Any discrepancies will be resolved through discussion and further review by a third researcher if required. Results: Electronic database searches have retrieved 12,139 references after removing 10,051 duplicates. As of the submission date of this protocol, we have completed the title and abstract screening. A total of 372 references will be included for full-text screening. Only 15.9\% (59/372) of these studies were focused on children: 11.0\% (41/372) for pediatric and 4.8\% (18/372) for neonatal patients. The scoping review and the manuscript will be completed by December 2020. Conclusions: Results of this review will guide researchers in determining gaps and shortcomings in the current evidence base for CCDS system use and evaluation in the early detection of sepsis. The findings will be shared with key stakeholders in clinical care, research, policy, and patient advocacy. International Registered Report Identifier (IRRID): PRR1-10.2196/24899 ", doi="10.2196/24899", url="http://www.researchprotocols.org/2020/11/e24899/", url="http://www.ncbi.nlm.nih.gov/pubmed/33215998" } @Article{info:doi/10.2196/17684, author="Milne-Ives, Madison and Lam, Ching and van Velthoven, Michelle and Meinert, Edward", title="The Impact of Brexit on the Pharmaceutical Supply Chain of the United Kingdom: Scoping Review Protocol", journal="JMIR Res Protoc", year="2020", month="Sep", day="23", volume="9", number="9", pages="e17684", keywords="Brexit", keywords="drug industry", keywords="pharmaceutical supply", abstract="Background: The continuing uncertainty around Brexit has caused concern in the pharmaceutical industry and among health care professionals and patients. The exact consequences of Brexit on the pharmaceutical supply chain in the United Kingdom will depend on whether a deal is reached and what it entails, but it is likely to be affected by the withdrawal of the United Kingdom from the European Union. Regulatory issues and delays in supply have the potential to negatively affect the ability of UK residents to receive an adequate and timely supply of necessary medicines. Objective: The purpose of this protocol is to provide an overview and critical analysis of current perspectives on the effect of Brexit on the UK pharmaceutical supply chain. Methods: The PRISMA-ScR (Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews) guidelines will be used to structure this protocol. A systematic search of MEDLINE, EMBASE, PsycINFO, Healthcare Management Information Consortium (HMIC), Cochrane, Web of Science, Business Source Complete, EconLit, and Economist Intelligence Unit will be conducted, as well as a Google and Nexis.UK search for grey literature such as reports, opinion pieces, and press releases. Two reviewers will independently screen the titles and abstracts of identified references and select studies according to the eligibility criteria. Any discrepancies will then be discussed and resolved. One reviewer will extract data from the included studies into a standardized form, which will be validated by a second reviewer. Risk of bias will be assessed using the Cochrane Collaboration Risk of Bias tool for any randomized controlled trials; quality will be assessed using the relevant Critical Appraisal Skills Programme (CASP) checklists; and grey literature will be assessed using the Authority, Accuracy, Coverage, Objectivity, Date, Significance (AACODS) checklist. Outcomes include the agreement between sources on the potential, likelihood, and severity of the consequences of Brexit on the UK pharmaceutical supply chain. Results: Results will be included in the scoping review, which will be published in 2020. Conclusions: This scoping review will summarize the currently expected consequences of Brexit on the UK pharmaceutical supply chain. International Registered Report Identifier (IRRID): PRR1-10.2196/17684 ", doi="10.2196/17684", url="http://www.researchprotocols.org/2020/9/e17684/", url="http://www.ncbi.nlm.nih.gov/pubmed/32965239" } @Article{info:doi/10.2196/16781, author="Bjerkan, Jorunn and Kane, Bridget and Uhrenfeldt, Lisbeth and Veie, Marit and Fossum, Mariann", title="Citizen-Patient Involvement in the Development of mHealth Technology: Protocol for a Systematic Scoping Review", journal="JMIR Res Protoc", year="2020", month="Aug", day="28", volume="9", number="8", pages="e16781", keywords="eHealth", keywords="mHealth", keywords="medical informatics", keywords="telemedicine", keywords="system development", keywords="patient participation", keywords="community participation", keywords="delivery of health care", keywords="person-centered", keywords="community-based participatory research", abstract="Background: The development of mobile technology for information retrieval and communication, both at individual and health organizational levels, has been extensive over the last decade. Mobile health (mHealth) technology is rapidly adapting to the health care service contexts to improve treatment, care, and effectiveness in health care services. Objective: The overall aim of this scoping review is to explore the role of citizen-patient involvement in the development of mHealth technology in order to inform future interventions. By identifying key characteristics of citizen-patient involvement in system development, we aim to improve digital communication and collaboration between health care providers and citizen-patients, including sharing of health care data. Methods: The systematic scoping review will follow the Joanna Briggs Institute methodology for scoping reviews by searching literature in 3 steps. We will include literature reporting on the public, citizens, and patients participating in the development of mobile technology for health care purposes in MEDLINE, CINAHL, Scopus, EMBASE, and ProQuest Dissertations and Theses. A preliminary search was completed in MEDLINE and Scopus. The screening process will be conducted by 2 of the authors. Data will be extracted using a data extraction tool prepared for the study. Results: The study is expected to identify research gaps that will inform and motivate the development of mHealth technology. The final report is planned for submission to an indexed journal in November 2020. Conclusions: To our knowledge, this review will be the first review to provide knowledge about how citizen-patients participate in system developments for mHealth tools and the value that such involvement adds to the system development process. International Registered Report Identifier (IRRID): PRR1-10.2196/16781 ", doi="10.2196/16781", url="http://www.researchprotocols.org/2020/8/e16781/", url="http://www.ncbi.nlm.nih.gov/pubmed/32857061" } @Article{info:doi/10.2196/19031, author="Raphiphatthana, Buaphrao and Maulana, Herdiyan and Howarth, Timothy and Gardner, Karen and Nagel, Tricia", title="Digital Mental Health Resources for Asylum Seekers, Refugees, and Immigrants: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2020", month="Aug", day="24", volume="9", number="8", pages="e19031", keywords="eHealth", keywords="migrant", keywords="refugee", keywords="scoping review", keywords="immigrant", abstract="Background: Asylum seekers, refugees, and immigrants experience a number of risk factors for mental health problems. However, in comparison to the host population, these populations are less likely to use mental health services. Digital mental health approaches have been shown to be effective in improving well-being for the general population. Thus, they may provide an effective and culturally appropriate strategy to bridge the treatment gap for these populations vulnerable to mental health risks. Objective: This paper aims to provide the background and rationale for conducting a scoping review on digital mental health resources for asylum seekers, refugees, and immigrants. It also provides an outline of the methods and analyses, which will be used to answer the following questions. What are the available digital mental health resources for asylum seekers, refugees, and immigrants? Are they effective, feasible, appropriate, and accepted by the population? What are the knowledge gaps in the field? Methods: The scoping review methodology will follow 5 phases: identifying the research question; identifying relevant studies; study selection; charting the data; and collating, summarizing, and reporting the results. Searches will be conducted in the following databases: EBSCOhost databases (CINAHL Plus with Full Text, MEDLINE with Full Text, APA PsycArticles, Psychology and Behavioral Sciences Collection, and APA PsycInfo), PubMed, and Scopus. Additionally, OpenGrey, Mednar, and Eldis will be searched for gray literature. All primary studies and gray literature in English concerning the use of information and communication technology to deliver services addressing mental health issues for asylum seekers, refugees, and immigrants will be included. Results: This scoping review will provide an overview of the available digital mental health resources for asylum seekers, refugees, and immigrants and describe the implementation outcomes of feasibility, acceptability, and appropriateness of such approaches for those populations. Potential gaps in the field will also be identified. Conclusions: As of February 2020, there were no scoping reviews, which assessed the effectiveness, feasibility, acceptability, and appropriateness of the available digital mental health resources for asylum seekers, refugees, and immigrants. This review will provide an extensive coverage on a promising and innovative intervention for such populations. It will give insight into the range of approaches, their effectiveness, and progress in their implementation. It will also provide valuable information for health practitioners, policy makers, and researchers working with the population. International Registered Report Identifier (IRRID): PRR1-10.2196/19031 ", doi="10.2196/19031", url="http://www.researchprotocols.org/2020/8/e19031/", url="http://www.ncbi.nlm.nih.gov/pubmed/32831185" } @Article{info:doi/10.2196/19072, author="Johnson, Gr{\o}dem Susanne and Potrebny, Thomas and Larun, Lillebeth and Ciliska, Donna and Olsen, Rydland Nina", title="Usability Methods and Attributes Reported in Usability Studies of Mobile Apps for Health Care Education: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2020", month="Aug", day="4", volume="9", number="8", pages="e19072", keywords="user-computer interface", keywords="mobile app", keywords="online learning", keywords="health education", keywords="students", abstract="Background: E-learning technologies, including mobile apps, are used to a large extent in health care education. Mobile apps can provide extendable learning environments and motivate students for adaptive and collaborative learning outside the classroom context. Developers should design practical, effective, and easy-to-use mobile apps. Usability testing is an important part of app development in order to understand if apps meet the needs of users. Objective: The aim of this study is to perform a scoping review of usability methods and attributes reported in usability studies of mobile apps for health care education. Methods: The scoping review is guided by the methodological framework developed by Arksey \& O'Malley and further developed by Levac et al and Kahlil et al. The stages we will follow are as follows: (1) identifying the research question; (2) identifying relevant studies; (3) selecting studies; (4) charting the data; and (5) summarizing and reporting the results. We have developed two research questions to meet the aim of the study, which are as follows: (1) What usability methods are used to evaluate the usability of mobile apps for health care education? and (2) What usability attributes are reported in the usability studies of mobile apps for health care education? We will apply a comprehensive search of the literature, including 10 databases, a reference search, and a search for grey literature. Two review authors will independently screen articles for eligibility. Results: The initial electronic database searches were completed in March 2019. The literature search identified 14,297 unique references. Following title and abstract screening, the full texts of 369 records were obtained. The scoping review is expected to be completed in spring 2021. Conclusions: We expect the overview of usability methods and attributes reported in usability studies of mobile apps for health care education to contribute to the knowledge base for researchers and developers. It will give an overview of the research field and provide researchers and developers with relevant and important information on the usability research area, including highlighting possible research gaps. International Registered Report Identifier (IRRID): DERR1-10.2196/19072 ", doi="10.2196/19072", url="https://www.researchprotocols.org/2020/8/e19072", url="http://www.ncbi.nlm.nih.gov/pubmed/32750011" } @Article{info:doi/10.2196/17490, author="Buchanan, Christine and Howitt, Lyndsay M. and Wilson, Rita and Booth, G. Richard and Risling, Tracie and Bamford, Megan", title="Nursing in the Age of Artificial Intelligence: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2020", month="Apr", day="16", volume="9", number="4", pages="e17490", keywords="nursing", keywords="artificial intelligence", keywords="machine learning", keywords="robotics", keywords="compassionate care", keywords="scoping review", abstract="Background: It is predicted that digital health technologies that incorporate artificial intelligence will transform health care delivery in the next decade. Little research has explored how emerging trends in artificial intelligence--driven digital health technologies may influence the relationship between nurses and patients. Objective: The purpose of this scoping review is to summarize the findings from 4 research questions regarding emerging trends in artificial intelligence--driven digital health technologies and their influence on nursing practice across the 5 domains outlined by the Canadian Nurses Association framework: administration, clinical care, education, policy, and research. Specifically, this scoping review will examine how emerging trends will transform the roles and functions of nurses over the next 10 years and beyond. Methods: Using an established scoping review methodology, MEDLINE, Cumulative Index to Nursing and Allied Health Literature, Embase, PsycINFO, Cochrane Database of Systematic Reviews, Cochrane Central, Education Resources Information Centre, Scopus, Web of Science, and Proquest databases were searched. In addition to the electronic database searches, a targeted website search will be performed to access relevant grey literature. Abstracts and full-text studies will be independently screened by 2 reviewers using prespecified inclusion and exclusion criteria. Included literature will focus on nursing and digital health technologies that incorporate artificial intelligence. Data will be charted using a structured form and narratively summarized. Results: Electronic database searches have retrieved 10,318 results. The scoping review and subsequent briefing paper will be completed by the fall of 2020. Conclusions: A symposium will be held to share insights gained from this scoping review with key thought leaders and a cross section of stakeholders from administration, clinical care, education, policy, and research as well as patient advocates. The symposium will provide a forum to explore opportunities for action to advance the future of nursing in a technological world and, more specifically, nurses' delivery of compassionate care in the age of artificial intelligence. Results from the symposium will be summarized in the form of a briefing paper and widely disseminated to relevant stakeholders. International Registered Report Identifier (IRRID): DERR1-10.2196/17490 ", doi="10.2196/17490", url="http://www.researchprotocols.org/2020/4/e17490/", url="http://www.ncbi.nlm.nih.gov/pubmed/32297873" } @Article{info:doi/10.2196/16155, author="Chan, Virginia and Allman-Farinelli, Margaret", title="Efficacy of Functional Foods, Beverages, and Supplements Claiming to Alleviate Air Travel Symptoms: Protocol for a Systematic Review", journal="JMIR Res Protoc", year="2020", month="Mar", day="27", volume="9", number="3", pages="e16155", keywords="aircraft", keywords="dietary supplements", keywords="functional food", keywords="functional beverage", keywords="jetlag syndrome", keywords="sleep", abstract="Background: Airline passengers often experience symptoms when travelling on long and ultra-long flights. These range from minor discomforts such as gastrointestinal symptoms to more serious life-threatening clinical conditions such as deep vein thrombosis. The food and supplement industry have responded with a plethora of products that claim to prevent one or more of the physiological or psychological symptoms associated with air travel. Objective: The aim of this literature review is to evaluate the efficacy of functional foods, beverages, and supplements that claim to address the unwanted effects of air travel in healthy adult populations. Methods: This research is a two-stage process. The first step is a scoping review of the functional foods, beverages, and supplements making claims that they lessen or prevent the physical or psychological symptoms associated with commercial air travel. Databases (ie, Medline, Embase, PsycINFO, and Web of Science), gray literature (ie, the flight catering magazines PAX International, APEX, and Onboard Hospitality), and search engines (ie, Google and Bing) will be used to identify products and generate a database. The second stage is a systematic literature review of the evidence supporting any health claims made for such products. The search will be conducted in Medline, Embase, PsycINFO, Cumulative Index to Nursing and Allied Health Literature, and Cochrane Central Register of Controlled Trials. Additionally, gray literature that includes the reference list of studies included in the systematic literature review and scientific articles referenced by the products within our database will be hand searched. Randomized and nonrandomized controlled trials reporting on changes in flight-related physical or cognitive symptoms in healthy adults that were conducted in commercial flight or flight simulation settings will be included. Two authors will independently screen, extract data, and assess the strength of evidence and risk of bias of the studies. The strength of evidence will be judged using the Grading of Recommendations, Assessments, Developments, and Evaluations approach, and the risk of bias will be assessed using the appropriate Cochrane Collaboration tool (Risk of Bias for Randomized Control Trials II or Robins I for Nonrandomized Interventions). Results: The scoping review of available functional foods, beverages, and supplements was conducted from March 6, 2019, to August 31, 2019. The systematic literature review commenced on October 1, 2019. The review is expected to be completed in 2020. Conclusions: The review findings will help consumers and employees of commercial airlines make informed decisions on their use of functional foods and beverages for alleviating air travel--related symptoms. International Registered Report Identifier (IRRID): DERR1-10.2196/16155 ", doi="10.2196/16155", url="http://www.researchprotocols.org/2020/3/e16155/", url="http://www.ncbi.nlm.nih.gov/pubmed/32217495" } @Article{info:doi/10.2196/14157, author="Nygren, M. Jens and de Ruiter, Hans-Peter", title="Examining the Ethical Implications of Health Care Technology Described in US and Swedish PhD Dissertations: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2020", month="Jan", day="22", volume="9", number="1", pages="e14157", keywords="ethics", keywords="biomedical", keywords="technology", keywords="dissertation", keywords="doctoral education", keywords="scoping review", keywords="protocol", abstract="Background: The development of new biomedical technologies is accelerating at an unprecedented speed. These new technologies will undoubtedly bring solutions to long-standing problems and health conditions. However, they will likely also have unintended effects or ethical implications accompanying them. It may be presumed that the research behind new technologies has been evaluated from an ethical perspective; however, the evidence that this has been done is scant. Objective: This study aims to understand whether and in what manner PhD dissertations focused on health technologies describe actual or possible ethical issues resulting from their research. Methods: The purpose of scoping reviews is to map a topic in the literature comprehensively and systematically to identify gaps in the literature or identify key evidence. The search strategy for this protocol will include electronic databases (eg, ProQuest, PubMed, Diva, SwePub, and LIBRIS). Searches will be limited to PhD dissertations published in the United States and Sweden in the last 10 years. The study will be mapped in 5 stages: (1) identifying the research question, (2) identifying relevant studies, (3) study selection, (4) retrieving and charting the data, and (5) collating, summarizing, and reporting the results. Results: The findings of this study will indicate if and how researchers, PhD students, and their supervisors are considering ethics in their studies, including both research ethics and the ethical implications of their work. The findings can guide researchers in determining gaps and shortcomings in current doctoral education and offer a foundation to adjusting doctoral research education. Conclusions: In a society where technology and research are advancing at speeds unknown to us before, we need to find new and more efficient ways to consider ethical issues and address them in a timely manner. This study will offer an understanding of how ethics is currently being integrated into US and Swedish PhD dissertations and inform the future direction of ethics education at a doctoral level. International Registered Report Identifier (IRRID): PRR1-10.2196/14157 ", doi="10.2196/14157", url="https://www.researchprotocols.org/2020/1/e14157", url="http://www.ncbi.nlm.nih.gov/pubmed/32012096" } @Article{info:doi/10.2196/12624, author="Ramos Herrera, Martin Igor", title="Policies and Programs for the Prevention and Control of Breast Cancer in Mexican and Latin American Women: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2019", month="Jun", day="12", volume="8", number="6", pages="e12624", keywords="breast neoplasms", keywords="public policies", keywords="primary health care", keywords="systematic review", abstract="Background: Breast cancer has become a major public health problem around the world, especially in Mexico and Latin America. Screening for breast cancer, which involves self-examination, mammography, and clinical breast examination, is crucial for early diagnosis, which in turn is associated with improved outcomes and survival rates. Although breast cancer prevention and control activities are being implemented in Mexico and Latin America, as in many other countries, there are no comprehensive public reports that provide information on the number, type, and scope of these activities; the impact of the programs and actions implemented; and the policies that form the basis of these programs. Objective: This study aims to present the design of a protocol for a scoping review on the policies and action programs for breast cancer care in Mexico and Latin America, as well as their objectives and implementation plans. Methods: This scoping review is guided by the methodological reference framework proposed by Arksey and O'Malley. A systematic search of the following electronic databases will be performed: MEDLINE (PubMed), MEDLINE (EBSCOHost), CINAHL (EBSCOHost), Academic Search Complete (EBSCOHost), ERIC, ISI Web of Science (Science Citation Index) in English and Cochrane and MEDES-MEDicina in Spanish. A search will be conducted to identify relevant studies published between 2000 and 2018. Data will be analyzed and presented in descriptive statistics and qualitative content analyses with analysis matrices and semantic networks. The selected studies will be arranged according to the Specific Action Program, Prevention and Control of Female Cancer 2013-2018. Results: The intention is to perform this review during the first and second quarters of 2019 and present the results to health authorities by the first quarter of 2020. Results will also be sent for publication to an indexed journal by the second quarter of 2020. Conclusions: We present a protocol for a scoping review--type literature revision based on the Arksey and O'Malley methodology to be performed during the first quarter of 2019. According to this 6-stage methodology, we will identify the scientific publications that present or analyze first-level action policies and programs for breast cancer care in Mexican women, as well as the results of these policies and programs, if any. The outcome of this review will be used to define the basis of a research project intended to design an educational intervention strategy for the general public in Mexico to enable them to deal with this public health problem. International Registered Report Identifier (IRRID): PRR1-10.2196/12624 ", doi="10.2196/12624", url="http://www.researchprotocols.org/2019/6/e12624/", url="http://www.ncbi.nlm.nih.gov/pubmed/31199301" } @Article{info:doi/10.2196/10705, author="Meinert, Edward and Alturkistani, Abrar and Osama, Tasnime and Halioua-Haubold, Celine-Lea and Car, Josip and Majeed, Azeem and Wells, Glenn and MacLaren, E. Robert and Brindley, David", title="Digital Technology in Somatic and Gene Therapy Trials of Pediatric Patients With Ocular Diseases: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2019", month="Feb", day="07", volume="8", number="2", pages="e10705", keywords="clinical trial", keywords="health care", keywords="genomics", keywords="gene therapy", keywords="personalized medicine", abstract="Background: Pharmacogenomics suggests that diseases with similar symptomatic presentations often have varying genetic causes, affecting an individual patient's response to a specific therapeutic strategy. Gene therapies and somatic cell therapies offer unique therapeutic pathways for ocular diseases and often depend on increased understanding of the genotype-phenotype relationship in disease presentation and progression. While demand for personalized medicine is increasing and the required molecular tools are available, its adoption within pediatric ophthalmology remains to be maximized in the postgenomic era. Objective: The objective of our study was to address the individual hurdles encountered in the field of genomic-related clinical trials and facilitate the uptake of personalized medicine, we propose to conduct a review that will examine and identify the digital technologies used to facilitate data analysis in somatic and gene therapy trials in pediatric patients with ocular diseases. Methods: This paper aims to present an outline for Healthcare Information Technology and Information and Communication Technology resources used in somatic and gene therapy clinical trials in children with ocular diseases. This review will enable authors to identify challenges and provide recommendations, facilitating the uptake of genetic and somatic therapies as therapeutic tools in pediatric ophthalmology. The review will also determine whether conducting a systematic review will be beneficial. Results: Database searches will be initiated in September 2018. We expect to complete the review in December 2019. Conclusions: Based on review findings, the authors will summarize methods used for facilitating IT integration in personalized medicine. Additionally, it will identify further research gaps and determine whether conducting further reviews will be beneficial. International Registered Report Identifier (IRRID): PRR1-10.2196/10705 ", doi="10.2196/10705", url="http://www.researchprotocols.org/2019/2/e10705/", url="http://www.ncbi.nlm.nih.gov/pubmed/30730295" } @Article{info:doi/10.2196/resprot.7407, author="Coathup, Victoria and Hamakawa, Nao and Finlay, Teresa and Bell, Jessica and Kaye, Jane and Kato, Kazuto", title="Participant-Centric Initiatives and Medical Research: Scoping Review Protocol", journal="JMIR Res Protoc", year="2017", month="Dec", day="12", volume="6", number="12", pages="e245", keywords="patient engagement", keywords="patient public involvement", keywords="digital technology", keywords="patient participation", keywords="research participant", keywords="dynamic consent", keywords="data sharing", keywords="patient empowerment", abstract="Background: Significant advances in digital technologies have meant that health care data can be collected, stored, transferred, and analyzed for research purposes more easily than ever before. Participant-centric initiatives (PCI) are defined as ``tools, programs, and projects that empower participants to engage in the research process'' using digital technologies and have the potential to provide a number of benefits to both participants and researchers, including the promotion of public trust in medical research, improved quality of research, increased recruitment and retention, and improved health care delivery. Objective: The main objective of this scoping review is to describe the extent and range of PCIs across the United Kingdom, United States, and Japan that are designed to facilitate medical research. Methods: The methodological framework described by Levac et al will be applied to this scoping review. We will search electronic databases (MEDLINE, EMBASE, PsychINFO, Cumulative Index to Nursing, and Allied Health Literature and CiNii), grey literature sources, Internet search engines (Google and Bing), and hand search key journals and reference lists of relevant articles. All digital tools and programs will be eligible for inclusion if there is a description of key features and functions that fall within the parameters of a PCI. Only those that play a role in medical research will be included. Results: Preliminary searches conducted in MEDLINE and EMBASE retrieved 1820 and 2322 results, respectively. The scoping review will be completed by January 2018. Conclusions: The scoping review will be the first to map the extent and range of PCIs currently available across the United Kingdom, United States, and Japan, and will be the first review to contribute to a better understanding of what PCIs patients may benefit from. Researchers and practitioners will be able to use information in this review as a guide for patients and also as a guide for the development of future tools and programs. The results will be disseminated through a peer-reviewed publication and conference presentations. ", doi="10.2196/resprot.7407", url="http://www.researchprotocols.org/2017/12/e245/", url="http://www.ncbi.nlm.nih.gov/pubmed/29233800" } @Article{info:doi/10.2196/resprot.7727, author="Pereira, Filipa and Salvi, Mireille and Verloo, Henk", title="Beliefs, Knowledge, Implementation, and Integration of Evidence-Based Practice Among Primary Health Care Providers: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2017", month="Aug", day="01", volume="6", number="8", pages="e148", keywords="evidence-based practice", keywords="primary healthcare", keywords="primary healthcare providers", keywords="beliefs", keywords="knowledge", keywords="implementation", abstract="Background: The adoption of evidence-based practice (EBP) is promoted because it is widely recognized for improving the quality and safety of health care for patients, and reducing avoidable costs. Providers of primary care face numerous challenges to ensuring the effectiveness of their daily practices. Primary health care is defined as: the entry level into a health care services system, providing a first point of contact for all new needs and problems; patient-focused (not disease-oriented) care over time; care for all but the most uncommon or unusual conditions; and coordination or integration of care, regardless of where or by whom that care is delivered. Primary health care is the principal means by which to approach the main goal of any health care services system: optimization of health status. Objective: This review aims to scope publications examining beliefs, knowledge, implementation, and integration of EBPs among primary health care providers (HCPs). Methods: We will conduct a systematic scoping review of published articles in the following electronic databases, from their start dates until March 31, 2017: Medical Literature Analysis and Retrieval System Online (MEDLINE) via PubMed (from 1946), Embase (from 1947), Cumulative Index to Nursing and Allied Health Literature (CINAHL; from 1937), the Cochrane Central Register of Controlled Trials (CENTRAL; from 1992), PsycINFO (from 1806), Web of Science (from 1900), Joanna Briggs Institute (JBI) database (from 1998), Database of Abstracts of Reviews of Effects (DARE; from 1996), Trip medical database (from 1997), and relevant professional scientific journals (from their start dates). We will use the predefined search terms of, ``evidence-based practice'' and, ``primary health care'' combined with other terms, such as, ``beliefs'', ``knowledge'', ``implementation'', and ``integration''. We will also conduct a hand search of the bibliographies of all relevant articles and a search for unpublished studies using Google Scholar, ProQuest, Mednar, and WorldCat. We will consider publications in English, French, Spanish, and Portuguese. Results: The electronic database searches were completed in April 2017. Retrieved articles are currently being screened, and the entire study is expected to be completed by November 2017. Conclusions: This systematic scoping review will provide a greater understanding of the beliefs, knowledge, implementation, and integration of EBPs among primary HCPs. The findings will inform clinical practice and help to draw a global picture of the EBP research topics that are relevant to primary care providers. ", doi="10.2196/resprot.7727", url="http://www.researchprotocols.org/2017/8/e148/", url="http://www.ncbi.nlm.nih.gov/pubmed/28765102" } @Article{info:doi/10.2196/resprot.6873, author="Bidonde, Julia and Boden, Catherine and Busch, J. Angela and Goes, M. Suelen and Kim, Soo and Knight, Emily", title="Dance for Adults With Fibromyalgia---What Do We Know About It? Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2017", month="Feb", day="22", volume="6", number="2", pages="e25", keywords="fibromyalgia", keywords="dance", keywords="scoping review", keywords="physical activity", keywords="adults", keywords="protocol", abstract="Background: Fibromyalgia is a chronic disorder characterized by widespread muscular tenderness, pain, fatigue, and cognitive difficulties. Nonpharmacological treatment options, such as physical activity, are important for people with fibromyalgia. There are strong recommendations to support engagement in physical activity for symptom management among adults with fibromyalgia. Dance is a mode of physical activity that may allow individuals with fibromyalgia to improve their physical function, health, and well-being. Dance has the potential to promote improved pain processing while simultaneously providing the health and social benefits of engaging in physical activity that contributes to symptom management. However, we are unaware of current evidence on dance as a nonpharmacological/physical activity intervention for adults with fibromyalgia. Objective: The aims of the study are to provide an overview of the extant evidence to understand how dance is used for individuals with fibromyalgia; to examine the extent, range, and nature of research activity in the area; and to determine the value of undertaking a full systematic review. Methods: Scoping reviews are useful to comprehensively and systematically map the literature and identify key evidence, or research gaps. The search strategy will involve electronic databases including Medline, Embase, Cochrane Library, PsycInfo, Cumulative Index of Nursing and Allied Health Literature (CINAHL), Literature in the Health Sciences in Latin America and the Caribbean (LILACS), Allied and Complementary Medicine (AMED), International Bibliography of Theatre and Dance, Physiotherapy Evidence Database (PEDro), Trip, Proquest Theses/Dissertations, Web of Science, World Health Organization International Clinical Trials Registry Platform, and ClinicalTrials.gov. The study will be mapped in seven stages: (1) identifying the research questions, (2) identifying relevant studies, (3) selecting the studies, (4) charting the data, (5) collating, summarizing and reporting the results, (6) consulting, and (7) disseminating the knowledge. Results: The search, title, and abstract are now completed; full text screening was carried out and authors are awaiting interlibrary loans and translations. Data extraction will start shortly after full text `screening' is completed. Completion is expected in Fall 2017. Conclusions: To our knowledge this will be the first attempt to systematically identify knowledge of dance as a potential intervention for adults with fibromyalgia. This scoping review offers a feasible means for describing the evidence specific to dance and fibromyalgia; results will provide unique insights concerning the breadth and depth of literature in the area. An analysis of this body of literature as a whole may reveal new research directions or unknown ways this intervention could strengthen current management approaches of the disease. ", doi="10.2196/resprot.6873", url="http://www.researchprotocols.org/2017/2/e25/", url="http://www.ncbi.nlm.nih.gov/pubmed/28228371" } @Article{info:doi/10.2196/resprot.5758, author="Abouchadi, Saloua and Shahabuddin, ASM and Zhang, Hong Wei and Firoz, Tabassum and Englert, Yvon and Nejjari, Chakib and De Brouwere, Vincent", title="Existing Models of Maternal Death Surveillance Systems: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2016", month="Oct", day="11", volume="5", number="4", pages="e197", keywords="maternal mortality", keywords="surveillance systems", keywords="completeness", keywords="usefulness", keywords="scoping review", keywords="protocol", abstract="Background: Maternal mortality measurement remains a critical challenge, particularly in low and middle income countries (LMICs) where little or no data are available and maternal mortality and morbidity are often the highest in the world. Despite the progress made in data collection, underreporting and translating the results into action are two major challenges that maternal death surveillance systems (MDSSs) face in LMICs. Objective: This paper presents a protocol for a scoping review aimed at synthesizing the existing models of MDSSs and factors that influence their completeness and usefulness. Methods: The methodology for scoping reviews from the Joanna Briggs Institute was used as a guide for developing this protocol. A comprehensive literature search will be conducted across relevant electronic databases. We will include all articles that describe MDSSs or assess their completeness or usefulness. At least two reviewers will independently screen all articles, and discrepancies will be resolved through discussion. The same process will be used to extract data from studies fulfilling the eligibility criteria. Data analysis will involve quantitative and qualitative methods. Results: Currently, the abstracts screening is under way and the first results are expected to be publicly available by mid-2017. The synthesis of the reviewed materials will be presented in tabular form completed by a narrative description. The results will be classified in main conceptual categories that will be obtained during the results extraction. Conclusions: We anticipate that the results will provide a broad overview of MDSSs and describe factors related to their completeness and usefulness. The results will allow us to identify research gaps concerning the barriers and facilitating factors facing MDSSs. Results will be disseminated through publication in a peer-reviewed journal and conferences as well as domestic and international agencies in charge of implementing MDSS. ", doi="10.2196/resprot.5758", url="http://www.researchprotocols.org/2016/4/e197/", url="http://www.ncbi.nlm.nih.gov/pubmed/27729305" } @Article{info:doi/10.2196/resprot.5263, author="Asghari, Shabnam and Maybank, Allison and Hurley, Oliver and Modir, Hilary and Farrell, Alison and Marshall, Zack and Kendall, Claire and Johnston, Sharon and Hogel, Matthew and Rourke, B. Sean and Liddy, Clare", title="Perspectives of People Living with HIV on Access to Health Care: Protocol for a Scoping Review", journal="JMIR Res Protoc", year="2016", month="May", day="18", volume="5", number="2", pages="e71", keywords="HIV", keywords="HIV Infections", keywords="Attitude to Health", keywords="Patient Satisfaction", keywords="Perspective", keywords="Health Services Accessibility", keywords="Health Services/Utilization", keywords="Access to Health Care", abstract="Background: Strategies to improve access to health care for people living with human immunodeficiency virus (PLHIV) have demonstrated limited success. Whereas previous approaches have been informed by the views of health providers and decision-makers, it is believed that incorporating patient perspectives into the design and evaluations of health care programs will lead to improved access to health care services. Objective: We aim to map the literature on the perspectives of PLHIV concerning access to health care services, to identify gaps in evidence, and to produce an evidence-informed research action plan to guide the Living with HIV program of research. Methods: This scoping review includes peer-reviewed and grey literature from 1946 to May 2014 using double data extraction. Variations of the search terms ``HIV'', ``patient satisfaction'', and ``health services accessibility'' are used to identify relevant literature. The search strategy is being developed in consultation with content experts, review methodologists, and a librarian, and validated using gold standard studies identified by those stakeholders. The inclusion criteria are (1) the study includes the perspectives of PLHIV, (2) study design includes qualitative, quantitative, or mixed methods, and (3) outcome measures are limited to patient satisfaction, their implied needs, beliefs, and desires in relation to access to health care. The papers are extracted by two independent reviewers, including quality assessment. Data is then collated, summarized, and thematically analyzed. Results: A total of 12,857 references were retrieved, of which 326 documents were identified as eligible in pre-screening, and 64 articles met the inclusion criteria (56\% qualitative studies, 38\% quantitative studies and 6\% mixed-method studies). Only four studies were conducted in Canada. Data synthesis is in progress and full results are expected in June, 2016. Conclusions: This scoping review will record and characterize the extensive body of literature on perspectives of PLHIV regarding access to health care. A literature repository will be developed to assist stakeholders, decision-makers, and PLHIV in developing and implementing patient-oriented health care programs. ", doi="10.2196/resprot.5263", url="http://www.researchprotocols.org/2016/2/e71/", url="http://www.ncbi.nlm.nih.gov/pubmed/27193076" }